Emicizumab (Hemlibra®) Booklets
The Irish Haemophilia Society is delighted to share two new booklets on Emicizumab (Hemlibra®). There is one booklet for people with Factor VIII Inhibitors and one for people with Factor …
The Irish Haemophilia Society is delighted to share two new booklets on Emicizumab (Hemlibra®). There is one booklet for people with Factor VIII Inhibitors and one for people with Factor …
As we continue through this global pandemic we would like to thank you for your continued support and patience and we would like to update you on two topics (i) …
Further update from National Coagulation Centre dated 27th April 2021 Read More »
Von Willebrand Disorder was the focus of World Haemophilia Week this year. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the …
World Haemophilia Week 2021 :: von Willebrand Disorder (VWD) :: A Recap :: Read More »
We have received an update regarding services in the National Coagulation Centre – please see below: General Information Patient consultations will continue either by telephone or video call. Face …
General Update from National Coagulation Centre | April 22 Read More »
We have received an update from the National Coagulation Centre (NCC) regarding Covid-19 vaccination in people with bleeding disorders, you can read it below: Any person with a bleeding …
Update regarding Covid-19 vaccination in people with bleeding disorders Read More »
We have received a communication (on April 23) regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital. You can read it below: Update …
Von Willebrand Disorder (VWD) is the most common inherited bleeding disorder yet 90% of people with VWD globally remain undiagnosed. We fully appreciate the need for greater education about VWD, …
Living with von Willebrand Disorder :: World Haemophilia Week 2021 Videos Read More »
Students from the Creative Media Department of Munster Technological University working in collaboration with Children’s Health Ireland (CHI) at Crumlin and the Irish Haemophilia Society, are creating an innovative education …
Innovative education tool will make a big difference to children with Haemophilia Read More »
Continuing with our series of Webinars, we have further meetings coming up on; Wednesday, March 31, 2021 @ 6pm: \’Hemlibra – An update for Parents’ with Dr Beatrice Nolan, CHI …