When a child is first diagnosed with a bleeding disorder, a parent may feel scared, worried or perhaps even guilty. This could be an especially hard time for those who have no family history of the condition. It is important to remember that with good treatment the child with a bleeding disorder has every chance of growing up as an active, fit person who can participate in family, school and working life as anyone else can.
Because bleeding disorders are rare conditions parents may feel isolated and it is very helpful to be in touch with others in a similar position. The Irish Haemophilia Society brings families together through information days, conferences, regional visits and other events. The Society also produces a number of publications each year and offers support and advice for families of people with bleeding disorders.