The Irish Haemophilia Society has grown from an informal and voluntary group of parents of people with haemophilia who wanted a better deal for their children, to a confident and professional charity with a committed board and professional staff to deal with the challenges ahead.
Today the Society is vigilant on safety and the availability of treatment and is thankfully maintaining a strong and united organisation. We produce various publications, have an excellent presence on social media, organise conferences and events for members, do home, hospital and school visits and give members regular updates on haemophilia treatment and developments.
We have an excellent board and staff, young enthusiastic members, and are working in a strategic and planned manner. We contribute effectively to the National Haemophilia Council, Product Selection Board and Consultative Council on Hepatitis C. We have a permanent headquarters, and provide services for all categories of members.
There are many ways to get involved as follows:
- By becoming a member of the I.H.S.
- By volunteering for the I.H.S. at an event.
- By organising a fundraising event.
- By signing up to our Planned Giving Appeal.
- By attending an event or conference.
If you would like to get involved, why not call the office on 01 6579900 for more information.