The Society was founded in 1968 by members of the medical profession, people with haemophilia, their families and friends who felt the need to provide support and advice for members and to improve the quality of life for people with haemophilia. The Society has grown from an informal and voluntary group of parents of people with haemophilia who wanted a better deal for their children, to a confident and professional charity with a committed board and professional staff to deal with the challenges ahead.
Today the Society is vigilant on safety and the availability of treatment and is thankfully maintaining a strong and united organisation. We produce various publications, organise information meetings, conferences, regional visits, home and hospital visits and updates on treatment. We have an excellent board and staff, young enthusiastic members, great volunteers and are working in a strategic and planned manner. We contribute effectively to the National Haemophilia Council, Product Selection Board and Consultative Council on Hepatitis C. We have a permanent headquarters and provide services for all categories of members. We remember those who have passed away. We remember and have learned from the tragedies which have befallen our community and we look to the future with confidence and hope.