The Irish Haemophilia Society (IHS) is the national representative body for people with haemophilia and other inherited bleeding disorders in Ireland. Established in 1968, we advocate for individuals and families living with conditions such as haemophilia, von Willebrand disorder and other rare bleeding disorders. We work to ensure access to comprehensive care, safe treatment products, and appropriate support services across the Irish healthcare system.

A central function of the Society is patient advocacy. The IHS have played a significant role in shaping haemophilia care in Ireland, particularly in relation to ensuring safe products, following the long-term consequences of contaminated blood products in previous decades. The Society continues to monitor emerging therapies, including extended half-life factor concentrates and gene therapy, to safeguard patient interests.

Beyond advocacy, we provide our members with practical and social support. We pride ourselves on maintaining close contact with members, offering support through phone calls and visits. We organise educational conferences and information days to build awareness, as well as to enable individuals and families to socialise with other members of the community. Through these activities, the Society fosters a structured community network while promoting informed, evidence-based care.

Find out about the history of the IHS here.