Welcome to haemophilia.ie
The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.
Newsfeed
Autumn Magazine 2017
Our Autumn Magazine is now published! This season’s magazine contains updates from CEO Brian O’Mahony on the recent inquiry into contaminated blood products in the UK, advancements in haemophilia therapy and advocacy for improvement of care. It contains new Read more >
Alynlam’s Hemophilia Program On Hold Following Patient Death
Alynlam’s hemophilia clinical program testing fitusiran in patients with either hemophilia A or B has been put on hold following the death of a patient in 1 of the company’s trials. In a news conference, Akshay Vaishnaw, M.D., Ph.D., vice Read more >
Transmission of Hepatitis B by Blood Transfusion
In late August, the Irish Blood Transfusion Service (IBTS) announced that a recipient of a blood transfusion had been infected with hepatitis B by that blood transfusion. Hepatitis B is a common form of infectious hepatitis, causing millions of Read more >
Members Conference 2017
We are pleased to announce details of our Members’ Conference, which takes place in the Hodson Bay Hotel in Athlone, Co. Westmeath, over the weekend of 20th to 22nd October, 2017. Adults’ Programme The adults’ programme, we hope, gives a Read more >
Inhibitor Update
People with haemophilia receive recombinant factor concentrates to help their blood to clot. However, in some people, the immune system may produce antibodies which block the effects of the treatment. These antibodies are known as ‘inhibitors’. Each year we Read more >
