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Welcome to haemophilia.ie

Representing people living with haemophilia, von willebrand’s and other inherited bleeding disorders

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

For a full list of treatment centres in Ireland, please click here

Newsfeed

What to Expect when Attending Children’s Health Ireland at Crumlin

During the Covid-19 pandemic arrangements in Children’s Health Ireland at Crumlin have changed somewhat. Below is a brief outline of some changes you can expect to find; There is a security guard based at all public entrances to the hospital Read more >

Flu Vaccine for Children

Did you know children aged 2 to 12 can get the nasal flu vaccine for free? Influenza (flu) is a very infectious illness caused by the flu virus. Flu spreads easily and infects both children and adults. Children are more Read more >

Travelling or Studying Abroad? What You Need to Know….

If you are relocating or studying abroad there is a lot to consider before you travel. Each country has their own rules and regulations that you must follow to ensure you receive equivalent healthcare to what you receive here in Read more >

The Patient Advocacy Service

The Patient Advocacy Service is an independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Launched in 2019, it is funded directly by the Department of Health and Read more >

The Long Acting Factor 9 (LAF9) study

The Long Acting Factor 9 (LAF9) study is being carried out in the National Coagulation Centre to assess the impact of switching from Benefix to Alprolix treatment for adults with severe haemophilia B. This study is investigating the clinical outcomes Read more >

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