?> ?> ?> ?> ?> ?> ?> ?> ?>

Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

Newsfeed

Update & Info: National Haemophilia System (iNDICI)

National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would Read more >

Our Autumn Magazine is out now!

The weather is getting cooler, the evenings are getting shorter and the member’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received Read more >

Haemophilia B Info Day

Saturday, November 16, 2019 | 12 Noon to 6PM Venue: Hotel Kilkenny The Irish Haemophilia Society are pleased to announce an information day on Haemophilia B in Hotel Kilkenny. With so many new developments in the pipeline in relation to Read more >

Updates from the Haemophilia Centres

A couple of updates from the Haemophilia Centres for members…. Firstly, the iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested Read more >

vCJD permanent deferral policy to be reversed – IBTS

The Irish Blood Transfusion Service (IBTS) has today announced that the permanent deferral of people who had resided in the UK for a cumulative period of more than 1 year between 1980 and 1996, due to potential risk of transmission Read more >

Top