Welcome to haemophilia.ie
The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.
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(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell
We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, we are delighted to share a new podcast, the first Read more >
Exciting new therapy for haemophilia
Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. Haemophilia is an inherited bleeding disorder where one of the Read more >
Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2
The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >
Update & Info: National Haemophilia System (iNDICI)
National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would Read more >
Our Autumn Magazine is out now!
The weather is getting cooler, the evenings are getting shorter and the member’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received Read more >
