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Welcome to haemophilia.ie

Representing people living with haemophilia, von willebrand’s and other inherited bleeding disorders

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

For a full list of treatment centres in Ireland, please click here

Newsfeed

CHI Message to Families attending CHI hospitals June 8 – 11 2021

Children’s Health Ireland (CHI) continues to review the situation resulting from the recent HSE cyber-attack and have provided us with the following update: Message to Families attending Children’s Health Ireland Hospitals Children’s Health Ireland (CHI) is continuing to review the Read more >

2021 VHI Virtual VHI Women’s Mini Marathon

Registration is now open for this year’s Women’s Mini Marathon which will be a virtual event and takes place on Sunday 19th September. You can race the real route of the VHI Women’s Mini Marathon in Dublin City from your Read more >

Innovative education tool will make a big difference to children with haemophilia

A clever education tool for children with haemophilia and their families has been created through an innovative collaboration involving students from the Creative Media Department of the Munster Technological University, Children’s Health Ireland at Crumlin and the Irish Haemophilia Society. Read more >

Bruising, nosebleeds and heavy periods in women – the symptoms of an underdiagnosed inherited disease that affects one in every 1000 Irish people

Originally published in Irish Independent on May 24, 2021 – read it here in full. Co Meath man Donal McCann suffers from bleeding disorder Von Willebrand disease. He shares what life is like with the condition, his relief at not Read more >

‘It looked like a scene from the movie Carrie, as I was drenched in blood’

Originally published in The Irish Times on May 25, 2021 – Read it in full here. A clotting disorder means Shannon Carey suffers from regular bruising and heavy bleeding Having a nosebleed is not pleasant, but, thankfully, for most of Read more >

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