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Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

For a full list of treatment centres in Ireland, please click here


AGM & Conference 2020

The AGM & Conference 2020 will take place in the Slieve Russell Hotel, Co Cavan over the weekend of March 6th to 8th. AGM packs have gone out to members via An Post and if you would like to attend Read more >

Our Winter Magazine is out now!

Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out now and you should all have received a copy in Read more >

All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy

Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to the end of 2020. The Haemophilia Product Selection and Monitoring Read more >

New Treatment Option for Prophylaxis in Severe Haemophilia A

Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the absence of FVIII. Hemlibra mimics the effect of FVIII and Read more >

New Independent Patient Advocacy Service Launched

The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded directly by the Department of Health and developed by The Read more >