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Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.


Updates from the NCC

A couple of updates from the NCC for members…. Firstly, the iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and Read more >

vCJD permanent deferral policy to be reversed – IBTS

The Irish Blood Transfusion Service (IBTS) has today announced that the permanent deferral of people who had resided in the UK for a cumulative period of more than 1 year between 1980 and 1996, due to potential risk of transmission Read more >

Member’s Conference 2019

Dates: Friday 18th to Sunday 20th October 2019 Venue: Shearwater Hotel, Ballinasloe We are pleased to announce details of our Members’ Conference, which takes place in the Shearwater Hotel in Ballinasloe, over the weekend of 18th to 20th October 2019. You Read more >

Our Summer 2019 Magazine is out now!

The summer issue of our magazine is out now and comes packed with loads great and interesting articles from members and staff, news and updates, upcoming projects, reports from events, and much more. There are reports from the EHC Leadership Read more >

Educational Grants 2019

Have you been accepted onto a post second level educational course? Are you going to college? Do you have haemophilia or a related bleeding disorder? Are you a family member of a person with haemophilia or related bleeding disorder? Yes, Read more >