Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

Newsfeed

Our Spring 2019 Magazine is out now!

The first 2019 issue of our magazine is out now and comes with a host of great articles from members and staff, news and updates, upcoming projects, reports from events, and a look back over our 50th Anniversary celebrations, and Read more >

Father & Son(s) Overnight 2019

We are pleased to announce details of our Father & Son(s) Overnight, which will take place over the weekend of Saturday 18th & Sunday 19th of May 2019 in Lilliput Adventure Centre in Mullingar, Co. Westmeath. This event is open Read more >

Gene Therapy – The Patient Perspective

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >

Safety in Gene Therapy

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >

Talking Red Conference – Belfast

We are delighted to announce that we are collaborating with the UK Haemophilia Society on two events in 2019, the first of which is the ‘Talking Red Information Day’ which takes place in the NICVA, 61 Duncairn Gardens, Belfast BT15 Read more >

Top