Welcome to haemophilia.ie
The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.
We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is Read more >
Due to a new HPRA policy on medical devices, gripper needles that are not CE marked can no longer be bought in pharmacies without a signed letter from your GP. For anybody who is low on their gripper needle supply, Read more >
We are pleased to announce that we have organised a ‘Carrier Conference’, which will take place over the weekend of Saturday 12th & Sunday 13th May, 2018 in Castleknock Hotel, Dublin. The conference is open to females aged 16 years Read more >
This season’s issue has a host of great articles from members and staff, interviews, galleries, upcoming projects, events, and much more. There are interesting articles on new developments in haemophilia care, plans for celebrating the 50th Anniversary of I.H.S. and Read more >
A statement has been issued by Roche (see below) with regards to the deaths of five individuals with haemophilia with inhibitors who passed away while receiving Hemlibra (previously known as Emicizumab). One of these deaths was previously known as it Read more >