Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.


Carrier Conference 2018

We are pleased to announce that we have organised a ‘Carrier Conference’, which will take place over the weekend of Saturday 12th & Sunday 13th May, 2018 in Castleknock Hotel, Dublin. The conference is open to females aged 16 years Read more >

Our Spring 2018 Magazine is out now!

This season’s issue has a host of great articles from members and staff, interviews, galleries, upcoming projects, events, and much more. There are interesting articles on new developments in haemophilia care, plans for celebrating the 50th Anniversary of I.H.S. and Read more >

Hemlibra (emicizumab) Update

A statement has been issued by Roche (see below) with regards to the deaths of five individuals with haemophilia with inhibitors who passed away while receiving Hemlibra (previously known as Emicizumab). One of these deaths was previously known as it Read more >

VHI Women’s Mini Marathon 2018

Looking for a challenge this summer or simply some fun in the sun? With registration due to open on March 7, look no further than the VHI Women’s Mini Marathon. Attracting thousands of dedicated women to walk, run or jog Read more >

Update: 50th Anniversary AGM & Conference Rescheduled

As you are all aware due to adverse weather conditions we had to postpone our AGM & Conference last weekend. As you can imagine, the staff and board were all hugely disappointed as were lots of members, volunteers and speakers. Read more >