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Welcome to haemophilia.ie

Representing people living with haemophilia, von willebrand’s and other inherited bleeding disorders

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

For a full list of treatment centres in Ireland, please click here

Newsfeed

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review :: 2020 – Issue 1

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

Upcoming Webinars in July

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday July 8 @ 2pm: Treatment choice in an era of change: Decision process on choosing a new product with David Page, Canadian Hemophilia Read more >

Von Willebrand’s Disorder (VWD) Information Day 2020

The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disorder (VWD) will now take place on Saturday, August 29 in the Castleknock Hotel, Dublin. This information day will give people an opportunity Read more >

Reported death of children on non-Haemophilia Gene Therapy clinical trial

In recent days, we have been made aware of the death of 2 children who were being treated as part of a clinical trial for Gene Therapy for a very serious childhood condition called X- linked myotubular myopathy (XLMTM). This Read more >

Haemophilia B Webinar :: July 18

Haemophilia B (or Christmas disease) is a bleeding disorder whereby there is a deficiency of factor IX. With so many new developments in the pipeline, in relation to haemophilia B, we are pleased to inform you that we have organised Read more >

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