Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

Newsfeed

Safety in Gene Therapy

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >

Talking Red Conference – Belfast

We are delighted to announce that we are collaborating with the UK Haemophilia Society on two events in 2019, the first of which is the ‘Talking Red Information Day’ which takes place in the NICVA, 61 Duncairn Gardens, Belfast BT15 Read more >

VHI Women’s Mini Marathon 2019

Looking for a challenge this summer or simply some fun in the sun? With online registration due to open from tomorrow, February 28, look no further than the VHI Women’s Mini Marathon. This year the VHI Women’s Mini Marathon will Read more >

Gene Therapy: How do Clinical Trials Work?

With our Annual Conference coming up at the beginning of March, at which one of the major topics will be Novel Therapies, we will shortly have available a new Publication – an Update on Novel Therapies. A major area of Read more >

von Willebrand’s Disease (VWD) Information Day 2019

Date: Saturday, April 13 2019Time: 12 Noon – 5PMVenue: Midlands Hotel, Portlaoise The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disease (VWD) will take place on Saturday, April 13th in the Midlands Read more >

Top