Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.


Ageing Conference 2019

Dates: Friday 28th to Sunday 30th June 2019 Venue: Killeshin Hotel, Portlaoise, Co. Laois We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with Read more >

Wicklow Mountains Cycle Challenge

Now in its’ fourth year, the Wicklow Mountains Cycle Challenge is an annual event organised by St James’s Hospital Foundation with all proceeds going to St James’s Hospital, Dublin. Since its beginning in 2016, the event has doubled in participation Read more >

Our Spring 2019 Magazine is out now!

The first 2019 issue of our magazine is out now and comes with a host of great articles from members and staff, news and updates, upcoming projects, reports from events, and much more. There are lots of interesting articles; Brian Read more >

Father & Son(s) Overnight 2019

We are pleased to announce details of our Father & Son(s) Overnight, which will take place over the weekend of Saturday 18th & Sunday 19th of May 2019 in Lilliput Adventure Centre in Mullingar, Co. Westmeath. This event is open Read more >

Gene Therapy – The Patient Perspective

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >