Welcome to haemophilia.ie
The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.
Newsfeed
New Treatment Option for Prophylaxis in Severe Haemophilia A
Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the absence of FVIII. Hemlibra mimics the effect of FVIII and Read more >
New Independent Patient Advocacy Service Launched
The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded directly by the Department of Health and developed by The Read more >
Haemophilia extends the boundaries of electronic health care in Ireland
On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed by Valentia Technologies in collaboration with the National Coagulation centre Read more >
(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell
We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, we are delighted to share a new podcast, the first Read more >
Exciting new therapy for haemophilia
Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. Haemophilia is an inherited bleeding disorder where one of the Read more >
