Welcome to haemophilia.ie

The Irish Haemophilia Society represents the interests of people with haemophilia, von Willebrand’s disease and other inherited bleeding disorders. We provide information, education, publications, outreach and support, advocacy, hospital and home visits and conferences and events for people with bleeding disorders and their families. We aim to assist people with bleeding disorders to be positive and proactive with their health and to maximise their quality of life.

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von Willebrand’s Disease (VWD) Information Day 2019

Date: Saturday, April 13 2019Time: 12 Noon – 5PMVenue: Midlands Hotel, Portlaoise The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disease (VWD) will take place on Saturday, April 13th in the Midlands Read more >

Gene Therapy for haemophilia A & B.

With our Annual Conference coming up at the beginning of March, at which one of the major topics will be Novel Therapies, we will shortly have available a new Publication – an Update on Novel Therapies. A major area of Read more >

Understanding Gene Therapy

With our Annual Conference coming up at the beginning of March, at which one of the major topics will be Novel Therapies, we will shortly have available a new Publication – an Update on Novel Therapies. A major area of Read more >

NCC Industrial Action Update for February 5th & 7th

The Irish Nurses and Midwives Organisation (INMO) has advised of their intent to undertake Industrial Action nationally. The next planned actions are a 24-hour strikes commencing at 8am on Tuesday, February 5th and Thursday, February 7th. The NCC has stressed that Read more >

Update: Medical Social Work Department @ OLCHC

We’ve received an update from the Medical Social Work Department at Our Lady’s Children’s Hospital, Crumlin that Lynne McKeon in OLCHC will be changing teams from Monday, January 28th and will no longer be working with haemophilia families. However, Lynne Read more >

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