Please note that the closing date for applications has been extended until the 30th of September. Have you been accepted onto a post second level educational course? Are you going to college? Do you have haemophilia or a related bleeding disorder? Are you a family member of a person with haemophilia or related bleeding disorder? …
We have been asked by the National Coagulation Centre (NCC) to update members on the contact Details for Niamh Larkin, Advance Nurse Practitioner (ANP) in Haemophilia who manages our severe haemophilia patients on home treatment, which are as follows: Land line: 01 416 2141/01 416 2142 – Ask to speak to Niamh directly . Mobile: …
Dates: 2nd to 4th September 2022 Venue: Hodson Bay Hotel, Athlone, Co. Westmeath. We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is very reassuring …
We have received an update for members with bleeding disorders attending the NCC, please see below: The global COVID19 pandemic is ongoing and we would like to thank you for your continued support and patience. Although overall case numbers and numbers of people needing hospitalisation have improved in comparison to earlier waves, there is a …
update for people with bleeding disorders attending the NCC Read More »
Brilliant New Video Shines a Light on Transition from a paediatric (children’s) hospital to an adult hospital. Sunday, 17 April marked World Haemophilia Day 2022. This year, the National Coagulation Centre (NCC) at St James’s Hospital and Children’s Health Ireland (CHI) are shining a light on the journey experienced by young people when they transfer …
New Video Focuses on Transition to Adult Health Services Read More »
20 years on from the publication of the Lindsay Tribunal Report, procurement of Haemophilia medications in Ireland overseen by the Haemophilia Product Selection and Monitoring Advisory Board (HPSMAB) is now seen as the most effective model globally in haemophilia care. The success of the HPSMAB and National Haemophilia Council (NHC) is being highlighted by the …
In conjunction with CHI at Crumlin, the I.H.S. is delighted to announce a Newly Diagnosed Info Day in Castleknock Hotel on Saturday, July 16.
Entries are now open for the VHI Women’s Mini Marathon 2022, which will be taking place in Dublin City on Bank Holiday Sunday 5th June. In 1983, 9,000 incredible women entered Ireland’s first Women’s Mini Marathon in Dublin. In 2022, to celebrate its 40th magical year, WMM will stand for Women Making Magic! Now one …
The Family Forum at Children’s Health Ireland (CHI) was set up to provide a platform to share ideas, listen and work as partners in care, with our families, to make CHI a world renowned service for children, young people and their families. There have been two Family Forum meetings to date and they are continuing …
