Brilliant New Video Shines a Light on Transition from a paediatric (children’s) hospital to an adult hospital.
Sunday, 17 April marked World Haemophilia Day 2022. This year, the National Coagulation Centre (NCC) at St James’s Hospital and Children’s Health Ireland (CHI) are shining a light on the journey experienced by young people when they transfer their care from a paediatric (children’s) hospital to an adult hospital.
Initially, this can be an overwhelming experience for young adults with bleeding disorders. However, the end goal is to see each person take control of their condition and their life.
While the experience of transfer of care can be unsettling for some people, the multidisciplinary teams at the NCC and CHI aim take a person centred approach, instilling confidence so that young adults with bleeding disorders are enabled to be partners in their care.
Taking little details into consideration makes the transition to the NCC a more enjoyable experience. Scheduling appointments at a less busy time, having in-depth conversations with each person and introducing the wider multidisciplinary team on a phased basis are all standard practices of a smooth and successful transition.
In the video below, David recalls his transition of care from CHI Crumlin to the NCC and explains how he overcame his anxieties from meeting with his consultant alone to finding a mode of transport to get to his appointment.
David was encouraged to build and grow in all aspects of his life, both in and out of hospital “they give you the opportunity to break that mould from what you used to be as a kid with your parents doing the talking, to having to do it yourself”.
The NCC encourages young adults to develop their skills for self-management, empowering them to set their own personal goals and importantly, achieve them.
The NCC and the Children’s Coagulation Centre in CHI are Comprehensive Care Centres for adults and children with bleeding disorders in Ireland and provide clinical services, research, training and education on a national level. Medical care for people with bleeding disorders is available on a 24-hour basis, with a consultant-led medical team contactable at all times in both centres.