Date: Saturday July 16 2022
Venue: Castleknock Hotel, Dublin
We are delighted to announce that an Information Day for parents of newly diagnosed children with bleeding disorders will take place on Saturday 16th July 2022 at Castleknock Hotel in Dublin 15. This event is being organised by Children’s Health Ireland at Crumlin and the Irish Haemophilia Society.
When a child is diagnosed with a bleeding disorder, parents may find this a very worrying time. This may be an especially hard time for those who have no family history of the condition. Some people talk about things while others bottle up their worries and concerns.
Parents and other members of the extended family need to have the reality of haemophilia carefully and repeatedly explained to them by members of the comprehensive haemophilia care team. After a while, parents may even find that it is not nearly as bad as they first imagined. It is important to remember that with good treatment a child with a bleeding disorder has every chance of growing up as an active, fit child who can participate
in family, school and later working life. We hope that by organising this event, that we can bring families together in this way.
The Programme is as follows:
11.00 – 12.00 Registration
12.00 – 13.00 Buffet Lunch
13.00 – 14.00 Introduction to Haemophilia & Services at CHI, Crumlin
Dr. Beatrice Nolan, Consultant Paediatric Haematologist and the some of the team from National Paediatric Centre at CHI, Crumlin.
14.00 – 15.00 Introduction to Irish Haemophilia Society Services
Mr. Brian O’Mahony, Chief Executive, Irish Haemophilia Society and some of the team from the office.
15.00 – 15.30 Coffee Break
15.30 – 17.00 Open Forum Discussion
This event which is open to all family members of newly diagnosed children (aged 0-5 years) is free of charge to attend.
If you are interested in attending this event, please call the Irish Haemophilia Society on 01 6579900 or email: info@haemophilia.ie, to book your place.