The Parents Conference 2016 will take place on 24th – 26th June in the Sheraton Hotel, Athlone, Co. Westmeath. As this is one of our biggest conference, we would ask you to register your booking as soon as possible as the children\’s groups fill up quite fast and places are allocated on a first come, …
We are pleased to announce, with immediate effect, through the work of the National Haemophilia Council (NHC), the National Ambulance Service (NAS), the Health Service Executive (HSE) and the Irish Haemophilia Society (IHS), that in an emergency situation, people with haemophilia, who need an ambulance and who are within a 60 minute transport time of …
Help Us, Help You….. Fundraising is very important to the Society, especially in these difficult times. However in difficult times people come into their own and it is wonderful to see people rallying around and making the extra effort to support us. We want you to know we really appreciate it. We are delighted to …
5th February 2016 ZIKA VIRUS – IRISH HAEMOPHILIA SOCIETY POSITION STATEMENT There has been a lot of media attention in the last week to the Zika virus. The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is to …
As you probably know already Barretstown is a specially designed camp that provides programmes of activities, adventure and fun for children with bleeding disorders and their siblings, which is also backed by a full medical team. There are different types of camps that may be suitable to your family, as follows: Family Camp: The entire …
The Irish Haemophilia Society offers education and support to all members living with haemophilia, von Willebrand\’s disease and other related bleeding disorders. From the time of diagnosis there are many issues facing people with haemophilia, and their parents, families and friends. From how to recognise a bleed, to treatment, to support services. Coming to terms with …
This IHS would like to welcome it\’s newest executive board member; Jim O\’Leary, who was recently co-opted onto the board. Following the election of the new board at the AGM in March 2016 the officers were elected for the coming year as follows: Traci Marshall-Dowling was re-elected as Chairperson, John Stack was elected Vice Chairperson, …
Haemophilia is an inherited condition. However, it is possible for the condition to appear in any family. It is thought that at least 30% of people with haemophilia have no family history of a bleeding disorder. It is difficult to be exact about this because of the way in which haemophilia is inherited. Technically, it …
The Spring 2016 magazine has been posted out to all members. We hope you enjoy the read. There are lots of interesting articles in this edition, including some lovely photos from the AGM in March. Click on this link to take a look!
