AGM 2017

The AGM and Conference will take place over the weekend of 3rd to 5th March 2017 in the Slieve Russell Hotel in Co. Cavan. AGM packs have gone out to members in the post. The closing date for registration is Friday 3rd February 2017. We hope to see you there.

Carrier Testing

Inherited bleeding disorders such as haemophilia can have an impact on daily life and psychological wellbeing not only of the affected individual but also on carrier mothers and other close family members. Before embarking on parenthood, known carriers or those who have the possibility of carrying haemophilia should be given the opportunity to consider the …

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The recently published SIPPET study which looked at the relative risk of developing inhibitors using recombinant FVIII as opposed to plasma-derived FVIII containing von Willebrand factor demonstrated a significantly higher risk of FVIII inhibitors when using recombinant FVIII. This has led to the need for discussion of the best treatment option for newly diagnosed previously …

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I.H.S. Hoodies

Our comfy I.H.S. hoodies are now available to purchase at all of our events and conferences. They come in a range of different sizes and are priced from €20 to €25. If you are interested in purchasing a hoodie, please give the office a call to place your order. We can have your hoodie available …

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New Children\’s Hospital

Planning Permission has been granted for the new children’s hospital in St. James’s Hospital. The Irish Haemophilia Society are delighted that planning permission has been granted, for the new children’s hospital project. This is great news for children, young people and their families. The project will bring together the three existing children\’s hospitals (Temple Street Children\’s …

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Travel Insurance

When you are travelling abroad Travel Insurance is vital.  Medical insurance should be checked well in advance of departure as it can be difficult to obtain for a person with haemophilia or related bleeding disorder.  A company that does provide insurance cover for pre-existing medical conditions including haemophilia is a company called Blue Insurance. They …

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vCJD update

The first case of variant Creutzfeldt-Jakob disease (vCJD) in a patient that is genetically different from all previous confirmed cases, has been reported in the UK. This suggests, as researchers have predicted, that the incubation of vCJD may take longer in certain groups of people. This 36 year old male patient was heterozygous at codon …

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