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Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review :: 2020 – Issue 1

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

Upcoming Webinars in July

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday July 8 @ 2pm: Treatment choice in an era of change: Decision process on choosing a new product with David Page, Canadian Hemophilia Read more >

Von Willebrand’s Disorder (VWD) Information Day 2020

The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disorder (VWD) will now take place on Saturday, August 29 in the Castleknock Hotel, Dublin. This information day will give people an opportunity Read more >

Reported death of children on non-Haemophilia Gene Therapy clinical trial

In recent days, we have been made aware of the death of 2 children who were being treated as part of a clinical trial for Gene Therapy for a very serious childhood condition called X- linked myotubular myopathy (XLMTM). This Read more >

Haemophilia B Webinar :: July 18

Haemophilia B (or Christmas disease) is a bleeding disorder whereby there is a deficiency of factor IX. With so many new developments in the pipeline, in relation to haemophilia B, we are pleased to inform you that we have organised Read more >

Mild & Moderate Haemophilia Webinar :: July 18

The Irish Haemophilia Society are pleased to announce that an information webinar for people with mild and moderate haemophilia will take place on Saturday July 18. This information webinar will give people an opportunity to gain a better understanding of Read more >

(Watch) Dental Care: The New Normal

As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Alison Dougall and Laura Parkinson discuss ‘Dental Care: The New Normal’. Recorded on Wednesday, June 24 2020.

2020 Educational Grants: Applications Now Open

We are delighted to announce that applications are now invited for the 2020 Educational Grants. The Society offers educational grants each year to people with haemophilia or related bleeding disorders, and/or their immediate family members who go on to do Read more >

Watch: Exercise & Physical Activity for Children

As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Paula Loughnane, Senior Physiotherapist at CHI Crumlin discusses ‘Exercise and Physical Activity for Children’. Paula looks at: Benefits of Physical Activity  What is Physical Activity? Physical Read more >

CEO Update | June 19, 2020

WFH Virtual Summit The WFH Virtual summit has been taking place on-line every day since last Sunday and finishes today. This meeting is taking place in lieu of the WFH International Congress which was due to take place this week Read more >

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