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Exciting new therapy for haemophilia

Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. Haemophilia is an inherited bleeding disorder where one of the Read more >

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

Update & Info: National Haemophilia System (iNDICI)

National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would Read more >

Our Autumn Magazine is out now!

The weather is getting cooler, the evenings are getting shorter and the member’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received Read more >

Updates from the Haemophilia Centres

A couple of updates from the Haemophilia Centres for members…. Firstly, the iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested Read more >

vCJD permanent deferral policy to be reversed – IBTS

The Irish Blood Transfusion Service (IBTS) has today announced that the permanent deferral of people who had resided in the UK for a cumulative period of more than 1 year between 1980 and 1996, due to potential risk of transmission Read more >

Our Summer 2019 Magazine is out now!

The summer issue of our magazine is out now and comes packed with loads great and interesting articles from members and staff, news and updates, upcoming projects, reports from events, and much more. There are reports from the EHC Leadership Read more >

Educational Grants 2019

The deadline for applications for the I.H.S. Educational Grants has now passed; best of luck to everyone who applied! The next steps? A subgroup of three people from the executive board (which cannot include anyone with a family member applying for Read more >

Family Adventure Overnight

Our Family Adventure Overnight in Lilliput Adventure Centre has been cancelled due to the very low number of registrations received. We are pleased to announce details of our Family Adventure Overnight which is open to all adult members of the Read more >

Wicklow Mountains Cycle Challenge

Now in its’ fourth year, the Wicklow Mountains Cycle Challenge is an annual event organised by St James’s Hospital Foundation with all proceeds going to St James’s Hospital, Dublin. Since its beginning in 2016, the event has doubled in participation Read more >

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