Roisin

Image of the map of Ireland for regional visits

Regional visit to Cork

Members, our first regional visit of the year is taking place the 13th and 14th of February in Cork. We will be meeting at the Kingsley Hotel in Cork from 6-8pm on the 13th, where there will be refreshments and the opportunity to discuss any issues you might be having. If a member cannot attend …

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von Willebrand

research reveals that over half of people have experienced an unusual bleeding symptom

New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis. Finding Von Willebrand shares the experiences of people living with von Willebrand’s disorder to raise awareness of the condition and support diagnosis in Ireland Dublin, 28th November 2022: Finding von Willebrand, a new campaign …

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Image of biomarin press release

First Haemophilia Gene Therapy Licensed by EMA

First Haemophilia Gene Therapy licensed by European Medicines Agency On Wednesday of this week, August 24th, it was announced that the European Medicines Agency ( EMA) have granted a conditional marketing authorisation to the company Biomarin for their FVIII Gene Therapy Valoctocogene Roxaparvovec (brand name: Roctavian). A conditional marketing authorisation (CMA) recognises that the medicine …

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