Roisin

New research reveals that more than half of people have experienced an unusual bleeding symptom

New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis Finding Von Willebrand shares the experiences of people living with von Willebrand’s disorder to raise awareness of the condition and support diagnoses in Ireland Dublin, 28th November 2022: Finding von Willebrand, a new campaign …

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Image of biomarin press release

First Haemophilia Gene Therapy Licensed by EMA

First Haemophilia Gene Therapy licensed by European Medicines Agency On Wednesday of this week, August 24th, it was announced that the European Medicines Agency ( EMA) have granted a conditional marketing authorisation to the company Biomarin for their FVIII Gene Therapy Valoctocogene Roxaparvovec (brand name: Roctavian). A conditional marketing authorisation (CMA) recognises that the medicine …

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Photo of Dara Dowling receiving an educational grant

Shared Experiences from Previous winners of Our Educational Grants

We are now taking applications for our 2022 Educational Grants. Our grants are designed for members going into post-second level education and are open to members with bleeding disorders, as well as to carriers and immediate family members. We want to share a few personal experiences from those who have been successful previously and how …

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