To mark World Haemophilia Day, we are holding a Mild/Moderate Haemophilia Information Day which will take place in the Grand Hotel in Malahide on the 22nd of April, 2023. This free event will include talks and discussions around important topics such as: For more information or to register for the event, please call the office …
Members, our first regional visit of the year is taking place the 13th and 14th of February in Cork. We will be meeting at the Kingsley Hotel in Cork from 6-8pm on the 13th, where there will be refreshments and the opportunity to discuss any issues you might be having. If a member cannot attend …
Our AGM and Conference 2023 will take place the 3rd to 5th March in Slieve Russell Hotel, Cavan.
New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis. Finding Von Willebrand shares the experiences of people living with von Willebrand’s disorder to raise awareness of the condition and support diagnosis in Ireland Dublin, 28th November 2022: Finding von Willebrand, a new campaign …
research reveals that over half of people have experienced an unusual bleeding symptom Read More »
Around 4,900 people are affected by VWD in Ireland, yet only a third have received a diagnosis.
Find out the recipients of this year’s educational grants.
Our Von Willebrand Disorder Information Day is coming up in December.
Read about the highlights of the October Members’ Conference 2022.
First Haemophilia Gene Therapy licensed by European Medicines Agency On Wednesday of this week, August 24th, it was announced that the European Medicines Agency ( EMA) have granted a conditional marketing authorisation to the company Biomarin for their FVIII Gene Therapy Valoctocogene Roxaparvovec (brand name: Roctavian). A conditional marketing authorisation (CMA) recognises that the medicine …
