As you probably know already Barretstown is a specially designed camp that provides programmes of activities, adventure and fun for children with bleeding disorders and their siblings, which is also backed by a full medical team. There are different types of camps that may be suitable to your family, as follows: Family Camp: The entire …
The Irish Haemophilia Society offers education and support to all members living with haemophilia, von Willebrand\’s disease and other related bleeding disorders. From the time of diagnosis there are many issues facing people with haemophilia, and their parents, families and friends. From how to recognise a bleed, to treatment, to support services. Coming to terms with …
This IHS would like to welcome it\’s newest executive board member; Jim O\’Leary, who was recently co-opted onto the board. Following the election of the new board at the AGM in March 2016 the officers were elected for the coming year as follows: Traci Marshall-Dowling was re-elected as Chairperson, John Stack was elected Vice Chairperson, …
Haemophilia is an inherited condition. However, it is possible for the condition to appear in any family. It is thought that at least 30% of people with haemophilia have no family history of a bleeding disorder. It is difficult to be exact about this because of the way in which haemophilia is inherited. Technically, it …
The Spring 2016 magazine has been posted out to all members. We hope you enjoy the read. There are lots of interesting articles in this edition, including some lovely photos from the AGM in March. Click on this link to take a look!
