The second standalone EHC leadership conference took place in Brussels from the 9th to the 12th of June, 2016. The conference brought together volunteers, staff and board members from each EHC National Member Organisation (NMO), in order to discuss common goals and challenges that countries face in their bid to achieve sustainable haemophilia care. The …
Extended Half-Life Factor VIII In November 2015, the first extended half-life (EHL) factor VIII concentrate was licenced in Europe by the European Medicines Agency (EMA). In April 2016, the first two EHL factor IX concentrates were licenced by the EMA. Half-life is the amount of time it takes for the factor to decrease its circulating …
Planning Permission has been granted for the new children’s hospital in St. James’s Hospital. The Irish Haemophilia Society are delighted that planning permission has been granted, for the new children’s hospital project. This is great news for children, young people and their families. The project will bring together the three existing children\’s hospitals (Temple Street Children\’s …
When you are travelling abroad Travel Insurance is vital. Medical insurance should be checked well in advance of departure as it can be difficult to obtain for a person with haemophilia or related bleeding disorder. A company that does provide insurance cover for pre-existing medical conditions including haemophilia is a company called Blue Insurance. They …
The first case of variant Creutzfeldt-Jakob disease (vCJD) in a patient that is genetically different from all previous confirmed cases, has been reported in the UK. This suggests, as researchers have predicted, that the incubation of vCJD may take longer in certain groups of people. This 36 year old male patient was heterozygous at codon …
The Parents Conference 2016 will take place on 24th – 26th June in the Sheraton Hotel, Athlone, Co. Westmeath. As this is one of our biggest conference, we would ask you to register your booking as soon as possible as the children\’s groups fill up quite fast and places are allocated on a first come, …
We are pleased to announce, with immediate effect, through the work of the National Haemophilia Council (NHC), the National Ambulance Service (NAS), the Health Service Executive (HSE) and the Irish Haemophilia Society (IHS), that in an emergency situation, people with haemophilia, who need an ambulance and who are within a 60 minute transport time of …
Help Us, Help You….. Fundraising is very important to the Society, especially in these difficult times. However in difficult times people come into their own and it is wonderful to see people rallying around and making the extra effort to support us. We want you to know we really appreciate it. We are delighted to …
5th February 2016 ZIKA VIRUS – IRISH HAEMOPHILIA SOCIETY POSITION STATEMENT There has been a lot of media attention in the last week to the Zika virus. The World Health Organization (WHO) has declared the Zika virus a public health emergency of international concern. They define this as “an extraordinary event which is to …
