The Irish Haemophilia Society (I.H.S.) have been working with and collaborating with the Vietnam Hemophilia Association (VHA) since 2010. Back then, haemophilia treatment in Vietnam, was mainly with cryoprecipitate, which is a much less effect form of therapy. Access to factor concentrates was very limited. In 2010, 2.7 billion international units (iu) of factor concentrates …
eHealth Ireland is working to deliver an Electronic Health Record (EHR) for Ireland. As part of this, in 2016 eHealth Ireland is investing resources into 3 project areas known as the ‘Lighthouse Projects’ to build an understanding of the benefits of an EHR in the Irish healthcare system. These projects are in the clinical …
In mid-November 2016, the Society met with the new Minister for Health Simon Harris to brief him on the haemophilia landscape. We had a very constructive discussion where we pointed out the very positive impact of the Society’s involvement in the haemophilia product, tender and purchasing process over the past 12 years. We also briefed …
Demolition work has commenced on the St James’s campus in Dublin to allow for the building of the new National Children’s Hospital on that site. As part of this, the National Centre for Hereditary Coagulation Disorders (NCHCD) and the Hepatology units will both be demolished in the coming months to facilitate this. The NCHCD has …
The onward march of science and haemophilia continue unabated. At the recent National Hemophilia Foundation Gene Transfer and Novel Technologies Workshop, there was over 30 presentations on current and future trends and developments in gene therapy, new approaches to extended half-life factors and other products for haemophilia. In the July edition of the magazine, I …
The AGM and Conference will take place over the weekend of 3rd to 5th March 2017 in the Slieve Russell Hotel in Co. Cavan. AGM packs have gone out to members in the post. The closing date for registration is Friday 3rd February 2017. We hope to see you there.
Inherited bleeding disorders such as haemophilia can have an impact on daily life and psychological wellbeing not only of the affected individual but also on carrier mothers and other close family members. Before embarking on parenthood, known carriers or those who have the possibility of carrying haemophilia should be given the opportunity to consider the …
The recently published SIPPET study which looked at the relative risk of developing inhibitors using recombinant FVIII as opposed to plasma-derived FVIII containing von Willebrand factor demonstrated a significantly higher risk of FVIII inhibitors when using recombinant FVIII. This has led to the need for discussion of the best treatment option for newly diagnosed previously …
Our comfy I.H.S. hoodies are now available to purchase at all of our events and conferences. They come in a range of different sizes and are priced from €20 to €25. If you are interested in purchasing a hoodie, please give the office a call to place your order. We can have your hoodie available …
