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Information Meetings – New Haemophilia B Treatment

  Following a recent tender/procurement process undertaken by the Haemophilia Product Selection Board (which includes both haemophilia doctors and the Society), the recombinant factor IX coagulation factor concentrate used for the treatment of factor IX deficiency will be changed from Benefix to an Extended Half-Life factor IX concentrate called Alprolix for all people with factor …

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Hepatitis C Open Conference

  Date: Saturday 13th May 2017 Venue: Castleknock Hotel, Castleknock, Dublin 15 This one‐day conference, (organised by the Irish Haemophilia Society) will be an opportunity for people with Hepatitis C, to receive updates on treatment, how to access treatment and what happens after treatment. THERE IS NO CHARGE TO ATTEND THIS CONFERENCE BUT REGISTRATION IS …

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Clinical Trials

Gene Therapy The National Coagulation Centre (NCC) will be holding special clinics this month to offer blood tests to people with severe factor IX deficiency to assess their suitability for possible inclusion in a Gene Therapy clinical trial. Special clinics will be held on the mornings of Tuesday 21st March and Friday 24th March. Any …

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Long-term Safety and Efficacy Extension Study Data of ALPROLIX, Extended Half-life Treatment for Haemophilia B Patients

  Alprolix is the new extended half life treatment that will be available to haemophilia B patients in Ireland from April 2017. Alprolix will allow patients to infuse less frequently (typically once a week instead of twice a week.) Alprolix will also allow patients to maintain a higher trough level, meaning their factors levels won\’t …

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AGM 2017

The AGM & Conference takes place this coming weekend in the Slieve Russell Hotel in Co. Cavan. Many thanks to all of you who booked in to attend this conference. Confirmation letters went out to everyone who registered approximately 3 weeks ago. Registration will take place from 5.30pm to 8.00pm on Friday evening in the …

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Clinical Trial Update: HAVEN 1

One of the new prospective treatments for people with haemophilia which are currently undergoing clinical trials is the bi-specific antibody called ‘Emicizumab’. This antibody treatment is designed to be a subcutaneously administered treatment which mimics the effect of factor VIII. It can be used to treat people with factor VIII deficiency or people with factor …

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Calendar of Events for 2017

March Annual General Meeting & Conference Dates: 3rd – 5th March. Venue: Slieve Russell Hotel, Cavan. We will start off the weekend with registration and an informal buffet dinner on Friday evening, followed by a presentation on the history of the I.H.S. The weekend will be jam-packed with the Annual General Meeting, lectures, workshops and …

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