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Emicizumab (Hemlibra®) Booklets

The Irish Haemophilia Society is delighted to share two new booklets on Emicizumab (Hemlibra®). There is one booklet for people with Factor VIII Inhibitors and one for people with Factor VIII deficiency without Inhibitors. These publications have been produced as Read more >

Further update from National Coagulation Centre dated 27th April 2021

As we continue through this global pandemic we would like to thank you for your continued support and patience and we would like to update you on two topics (i) in- patient admission and (ii) vaccination: Update regarding ward designation Read more >

World Haemophilia Week 2021 :: von Willebrand Disorder (VWD) :: A Recap ::

Von Willebrand Disorder was the focus of World Haemophilia Week this year. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, VWD was the sole the focus Read more >

General Update from National Coagulation Centre | April 22

We have received an update regarding services in the National Coagulation Centre – please see below:  General Information  Patient consultations will continue either by telephone or video call. Face to face consultations will be arranged in situations where the Read more >

Update regarding Covid-19 vaccination in people with bleeding disorders

We have received an update from the National Coagulation Centre (NCC) regarding Covid-19 vaccination in people with bleeding disorders, you can read it below:   Any person with a bleeding disorder who is offered a vaccine appointment by their GP Read more >

Update regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital

We have received a communication (on April 23) regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital. You can read it below:   Update regarding ward designation for people with bleeding disorders who require Read more >

Living with von Willebrand Disorder :: World Haemophilia Week 2021 Videos

Von Willebrand Disorder (VWD) is the most common inherited bleeding disorder yet 90% of people with VWD globally remain undiagnosed. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To Read more >

Innovative education tool will make a big difference to children with Haemophilia

Students from the Creative Media Department of Munster Technological University working in collaboration with Children’s Health Ireland (CHI) at Crumlin and the Irish Haemophilia Society, are creating an innovative education tool for children with Haemophilia and their families. “My Buddy Read more >

Upcoming Webinars in March / April / May

Continuing with our series of Webinars, we have further meetings coming up on; Wednesday, March 31, 2021 @ 6pm: ‘Hemlibra – An update for Parents’ with Dr Beatrice Nolan, CHI @ Crumlin Wednesday, April 28, 2021 @ 6pm: ‘An Update Read more >

Living with von Willebrands Disorder :: Personal Perspectives

We fully appreciate the need for greater education about von Willebrands Disorder (VWD), greater public awareness and greater emphasis from the Society. To this end, VWD is the focus of our World Haemophilia Week events this year and we plan Read more >

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