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Novel Treatments in Haemophilia & other Bleeding Disorders 2021 – Issue 1

A Periodic Review | 2021 – Issue 1 The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic …

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Launch of Heart & Blood Campaign

We are excited to be involved with @MediaplanetIE on the Heart and Blood Campaign, launched in the Irish Independent and online. Read all about the various conditions affecting blood health such as blood cancers, blood clotting disorders and thrombosis and the various innovations in treatment at https://bit.ly/3qmsoyk #HeartandBlood2021.

Annual Report 2020 | Available Now

Our Annual Report 2020 is available now with overviews on our activities, events, support and finance, and more from last year. Member’s should have received a physical copy in the post already but it is also available here digitally. You can read / download it below:

CHI Message to Families attending CHI hospitals June 8 – 11 2021

Children’s Health Ireland (CHI) continues to review the situation resulting from the recent HSE cyber-attack and have provided us with the following update: Message to Families attending Children’s Health Ireland Hospitals Children’s Health Ireland (CHI) is continuing to review the situation resulting from a national cyber attack on health IT systems. We still do not …

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a short animation created for young children who have Haemophilia and their families.

Innovative education tool will make a big difference to children with haemophilia

A clever education tool for children with haemophilia and their families has been created through an innovative collaboration involving students from the Creative Media Department of the Munster Technological University, Children’s Health Ireland at Crumlin and the Irish Haemophilia Society. My Buddy Cormac, an informative and positive awareness animation about haemophilia, focuses on the experience …

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Bruising, nosebleeds and heavy periods in women – the symptoms of an underdiagnosed inherited disease that affects one in every 1000 Irish people

Originally published in Irish Independent on May 24, 2021 – read it here in full. Co Meath man Donal McCann suffers from bleeding disorder Von Willebrand disease. He shares what life is like with the condition, his relief at not passing it on to his daughter and why he is telling his story to raise …

Bruising, nosebleeds and heavy periods in women – the symptoms of an underdiagnosed inherited disease that affects one in every 1000 Irish people Read More »

‘It looked like a scene from the movie Carrie, as I was drenched in blood’

Originally published in The Irish Times on May 25, 2021 – Read it in full here. A clotting disorder means Shannon Carey suffers from regular bruising and heavy bleeding Having a nosebleed is not pleasant, but, thankfully, for most of us, it is not a regular occurrence. However, Shannon Carey has endured them, and other …

‘It looked like a scene from the movie Carrie, as I was drenched in blood’ Read More »