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Upcoming Webinars in March / April / May

Continuing with our series of Webinars, we have further meetings coming up on; Wednesday, March 31, 2021 @ 6pm: ‘Hemlibra – An update for Parents’ with Dr Beatrice Nolan, CHI @ Crumlin Wednesday, April 28, 2021 @ 6pm: ‘An Update Read more >

Living with von Willebrands Disorder :: Personal Perspectives

We fully appreciate the need for greater education about von Willebrands Disorder (VWD), greater public awareness and greater emphasis from the Society. To this end, VWD is the focus of our World Haemophilia Week events this year and we plan Read more >

Inherited Bleeding Disorder May Lower Risk of Thrombosis with COVID-19 Infection

Inherited Bleeding Disorder May Lower Risk of Thrombosis with COVID-19 Infection 1 in 5 of women with heavy periods will have an underlying bleeding disorder Tuesday 13th April, 2021: Von Willebrand Disorder (VWD), an inherited bleeding disorder which affects the Read more >

Information for NCC patients regarding the Astra Zeneca COVID19 (Vaxevria) vaccine

COVID19 vaccines, including the AstraZeneca (Vaxrevia) vaccine, play an important role in containing this pandemic infection and in preventing COVID19 disease, which can be a severe condition with an increased risk of thrombosis. The National Immunisation Advisory Committee (NIAC) has Read more >

WFH and EHC release joint statement on AstraZeneca COVID-19 vaccine

Below is a joint statement from WFH and EHC on AstraZeneca COVID-19 vaccine – April 12, 2021 EMA, ISTH, WHO and many countries recommend benefit of COVID-19 vaccination outweighs the risks Risks of adverse events no higher in people with Read more >

An Update from I.H.S CEO on Covid-19 Vaccination

First published in our regular e-Zine on April 9, 2021 Covid-19 Vaccination The Society have been receiving a significant number of queries in relation to Covid-19 vaccination. Questions have been asked about prioritisation, where people will receive the vaccine, precautions Read more >

Haemophilia B Gene Therapy and Hepatocellular Carcinoma

Haemophilia B Gene Therapy and Hepatocellular Carcinoma In December 2020, a case of hepatocellular carcinoma (liver cancer) was reported in a man with haemophilia who was participating in a FIX Gene Therapy clinical trial called the HOPE-B trial. This is Read more >

World Haemophilia Week :: 2021 Theme :: von Willebrands Disorder

Join the Irish Haemophilia Society for World Haemophilia Week 2021 as we focus on von Willebrands Disorder (VWD). We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, Read more >

Information for NCC patients regarding the Astra Zeneca COVID-19 vaccine

Below is a statement from the National Coagulation Centre (NCC) regarding the Astra Zeneca COVID19 vaccine: On 18/03/2021, the safety committee of the EMA released a statement which confirmed that the benefits of the Astra Zeneca COVID19 vaccine continue to Read more >

EHC Position Statement on COVID-19 AstraZeneca vaccine

The following is a statement from the European Haemophilia Consortium (EHC) commenting on the European Medicines Agency (EMA) statement regards Covid-19 AstraZeneca vaccine: 19 March 2021 The European Haemophilia Consortium (EHC) has been closely monitoring the recent safety signal of Read more >

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