Month: April 2021

Further update from National Coagulation Centre dated 27th April 2021

As we continue through this global pandemic we would like to thank you for your continued support and patience and we would like to update you on two topics (i) in- patient admission and (ii) vaccination: Update regarding ward designation for people with bleeding disorders who require admission to SJH:  The H&H ward is …

Further update from National Coagulation Centre dated 27th April 2021 Read More »

World Haemophilia Week 2021 :: von Willebrand Disorder (VWD) :: A Recap ::

Von Willebrand Disorder was the focus of World Haemophilia Week this year. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, VWD was the sole the focus of our events this year. We had two webinars, one on ‘VWD Guidelines & Research …

World Haemophilia Week 2021 :: von Willebrand Disorder (VWD) :: A Recap :: Read More »

General Update from National Coagulation Centre | April 22

We have received an update regarding services in the National Coagulation Centre – please see below:  General Information  Patient consultations will continue either by telephone or video call. Face to face consultations will be arranged in situations where the consultant deems it necessary.  Phlebotomy / Blood testing remains restricted to blood tests required …

General Update from National Coagulation Centre | April 22 Read More »

Update regarding Covid-19 vaccination in people with bleeding disorders

We have received an update from the National Coagulation Centre (NCC) regarding Covid-19 vaccination in people with bleeding disorders, you can read it below:   Any person with a bleeding disorder who is offered a vaccine appointment by their GP or via the HSE portal should take it as this is likely to be the …

Update regarding Covid-19 vaccination in people with bleeding disorders Read More »

Update regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital

We have received a communication (on April 23) regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital. You can read it below:   Update regarding ward designation for people with bleeding disorders who require admission to SJH: – The H&H ward is currently required for the management of the …

Update regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital Read More »

Living with von Willebrand Disorder :: World Haemophilia Week 2021 Videos

Von Willebrand Disorder (VWD) is the most common inherited bleeding disorder yet 90% of people with VWD globally remain undiagnosed. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, VWD was the focus of our World Hemophilia Week 2021 with a series of …

Living with von Willebrand Disorder :: World Haemophilia Week 2021 Videos Read More »

a short animation created for young children who have Haemophilia and their families.

Innovative education tool will make a big difference to children with Haemophilia

Students from the Creative Media Department of Munster Technological University working in collaboration with Children’s Health Ireland (CHI) at Crumlin and the Irish Haemophilia Society, are creating an innovative education tool for children with Haemophilia and their families. “My Buddy Cormac“ a positive awareness animation about Haemophilia, focuses on the experience and challenges faced by …

Innovative education tool will make a big difference to children with Haemophilia Read More »