Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
This notice applies to you if you attend the NCC outpatient clinic, dental clinic, H&H assessment unit, Warfarin or DOAC clinics The NCC clinical team have been monitoring the evolving …
Notice to patients registered with the National Coagulation Centre (NCC) Read More »
For those of you booked in for our AGM & Conference, we are looking forward to seeing you all in Cavan tomorrow. Before that however, we\’ve have some important information …
The Irish Haemophilia Society has today announced that gene therapy has been used for the first time to treat a person with haemophilia in Ireland. The recipient has received gene …
First person with haemophilia in Ireland treated with gene therapy Read More »
Are you looking for a challenge this summer or simply some fun in the sun? Maybe it’s time to start thinking about this year\’s VHI Women’s Mini Marathon. The race …
Saturday April 18, 2020 | Castleknock Hotel, Dublin The Irish Haemophilia Society is delighted to announce that an information day for people with von Willebrand’s (VWD) will take place on Saturday, …
From 4 to 7 February 2020, the EAHAD 2020 Congress took place in The Hague, Netherlands. The theme of this year’s Congress was “A Golden Age of Treatment Choice” and, …
EAHAD 2020 Congress – A Golden Age of Treatment Choice Read More »
The AGM & Conference 2020 will take place in the Slieve Russell Hotel, Co Cavan over the weekend of March 6th to 8th. AGM packs have gone out to members …
Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out …
Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to …