News 2020

von Willebrand Disorder Webinar :: Sept 29, 2020

We were very disappointed to have had to cancel our von Willebrand Disorder (vWD) Information Day in Castleknock Hotel, in its place however, we have a virtual event. The I.H.S. is delighted to announce an information webinar on von Willebrand Read more >

Haemophilia & von Willebrand Disorder; An Essential Handbook for Parents

As a parent, when a child is diagnosed with a bleeding disorder, you may feel scared, worried and perhaps even guilty. This may be an especially hard time for those who have no family history of the condition. It is Read more >

WFH Virtual Summit 2020 Review Magazine

Due to the Covid-19 pandemic, the WFH International Congress this year, which was due to take place in Malaysia, was organized virtually in June as a Global Summit. The event was very successful. We did lose the ability to interact Read more >

Cancelled: von Willebrand’s Disorder Information Day

Following the government announcement last night, unfortunately we must cancel our vWD event that was due to take place on Saturday, August 29 in Castleknock Hotel. We are disappointed, however, we will re-schedule this event for later in the year Read more >

Remote arts programme at home for children with long-term health conditions

Join Helium Arts for a 6-week series of homebased creative activities delivered through creative collaboration, step-by-step booklets, fun art packs in the post, and online family sharings. Artist Chelsea Canavan will lead children aged 6-8 to new dimensions and shared Read more >

Upcoming Webinars in August / September

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Thursday, August 27: ‘Future services in the NCC and the role of the advanced nurse practitioner’ with Niamh Larkin. Time 6pm. Wednesday, September 2 Read more >

Watch: Gene Therapy Discussion from Webinar Series

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience The latest of which is a discussion on Gene Therapy with EHC President, Declan Noone & I.H.S. CEO Read more >

Our Summer Mag is out now!

The latest issue comes packed with loads of interesting articles from members and staff, news and updates, reports from events and more. In his CEO Report, Brian provides an update on Twinning, Gene Therapy and reports on the WFH Virtual Read more >

Watch I.H.S. Webinars On Demand

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience So far we have uploaded; Dental Care: The New Normal with Alison Dougall and Laura Parkinson Heavy Menstrual Read more >

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review :: 2020 – Issue 1

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

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