News 2020

Upcoming Webinars in July

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday July 8 @ 2pm: Treatment choice in an era of change: Decision process on choosing a new product with David Page, Canadian Hemophilia Read more >

Von Willebrand’s Disorder (VWD) Information Day 2020

The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disorder (VWD) will now take place on Saturday, August 29 in the Castleknock Hotel, Dublin. This information day will give people an opportunity Read more >

Reported death of children on non-Haemophilia Gene Therapy clinical trial

In recent days, we have been made aware of the death of 2 children who were being treated as part of a clinical trial for Gene Therapy for a very serious childhood condition called X- linked myotubular myopathy (XLMTM). This Read more >

Haemophilia B Webinar :: July 18

Haemophilia B (or Christmas disease) is a bleeding disorder whereby there is a deficiency of factor IX. With so many new developments in the pipeline, in relation to haemophilia B, we are pleased to inform you that we have organised Read more >

Mild & Moderate Haemophilia Webinar :: Cancelled

The webinar for people with mild and moderate haemophilia planned for Saturday July 18 has unfortunately cancelled. 

(Watch) Dental Care: The New Normal

As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Alison Dougall and Laura Parkinson discuss ‘Dental Care: The New Normal’. Recorded on Wednesday, June 24 2020.

2020 Educational Grants: Applications Now Open

We are delighted to announce that applications are now invited for the 2020 Educational Grants. The Society offers educational grants each year to people with haemophilia or related bleeding disorders, and/or their immediate family members who go on to do Read more >

Watch: Exercise & Physical Activity for Children

As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Paula Loughnane, Senior Physiotherapist at CHI Crumlin discusses ‘Exercise and Physical Activity for Children’. Paula looks at: Benefits of Physical Activity  What is Physical Activity? Physical Read more >

CEO Update | June 19, 2020

WFH Virtual Summit The WFH Virtual summit has been taking place on-line every day since last Sunday and finishes today. This meeting is taking place in lieu of the WFH International Congress which was due to take place this week Read more >

CEO Update | June 12, 2020

Zoom Update meetings We have a varied menu of zoom meetings for members to join for the remainder of this month. On Monday next, June 15th, we have the Chief Executive of Children’s Hospital Ireland, Eilish Hardiman giving an update Read more >

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