The weather is getting cooler, the evenings are getting shorter and the member\’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received a copy in the post , but if you would like to read the digital …
Saturday, November 16, 2019 | 12 Noon to 6PM Venue: Hotel Kilkenny The Irish Haemophilia Society are pleased to announce an information day on Haemophilia B in Hotel Kilkenny. With so many new developments in the pipeline in relation to haemophilia B, we would encourage people to attend this information day and find out more …
A couple of updates from the Haemophilia Centres for members…. Firstly, the iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would like to make patients aware that there …
The Irish Blood Transfusion Service (IBTS) has today announced that the permanent deferral of people who had resided in the UK for a cumulative period of more than 1 year between 1980 and 1996, due to potential risk of transmission of vCJD, has now been removed (see information below). The scientific evidence now supports this …
vCJD permanent deferral policy to be reversed – IBTS Read More »
Dates: Friday 18th to Sunday 20th October 2019 Venue: Shearwater Hotel, Ballinasloe The deadline for bookings for this event has now passed. Thanks to everyone who signed up, we are looking forward to an informative, fun and busy weekend. For those attending, you will receive a confirmation letter in the post two weeks before the event …
The summer issue of our magazine is out now and comes packed with loads great and interesting articles from members and staff, news and updates, upcoming projects, reports from events, and much more. There are reports from the EHC Leadership Conference, Talking Red Conference in Belfast, Father & Son(s) weekend and Twinning Programme in Vietnam …
The deadline for applications for the I.H.S. Educational Grants has now passed; best of luck to everyone who applied! The next steps? A subgroup of three people from the executive board (which cannot include anyone with a family member applying for any of the grants) will meet to consider and score the applications and make recommendations …
The Irish Haemophilia Society are pleased to announce that an information day for people with mild and moderate haemophilia will take place on July 20th in Kilashee Hotel in Naas, Co Kildare. This information day will give people an opportunity to gain a better understanding of mild and moderate haemophilia, treatments that are available and …
Our Family Adventure Overnight in Lilliput Adventure Centre has been cancelled due to the very low number of registrations received. We are pleased to announce details of our Family Adventure Overnight which is open to all adult members of the I.H.S. and all children aged seven upwards. The cost for the overnight is being subsidised …
