News 2019

Our Winter Magazine is out now!

Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out now and you should all have received a copy in Read more >

All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy

Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to the end of 2020. The Haemophilia Product Selection and Monitoring Read more >

New Treatment Option for Prophylaxis in Severe Haemophilia A

Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the absence of FVIII. Hemlibra mimics the effect of FVIII and Read more >

New Independent Patient Advocacy Service Launched

The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded directly by the Department of Health and developed by The Read more >

Haemophilia extends the boundaries of electronic health care in Ireland

On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed by Valentia Technologies in collaboration with the National Coagulation centre Read more >

(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell

We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, we are delighted to share a new podcast, the first Read more >

Exciting new therapy for haemophilia

Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. Haemophilia is an inherited bleeding disorder where one of the Read more >

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

Update & Info: National Haemophilia System (iNDICI)

National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would Read more >

Our Autumn Magazine is out now!

The weather is getting cooler, the evenings are getting shorter and the member’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received Read more >

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