Year: 2019

All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy

Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to the end of 2020. The Haemophilia Product Selection and Monitoring Advisory Board (HPSMAB) have extended the contract for the supply of recombinant extended half- life …

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Haemophilia extends the boundaries of electronic health care in Ireland

On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed by Valentia Technologies in collaboration with the National Coagulation centre in St. James’s hospital, Childrens Health Ireland at Crumlin, Cork University Hospital, Galway University hospital …

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(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell

We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, we are delighted to share a new podcast, the first of many hopefully. Recorded at our Member\’s Conference in Ballinasloe, it features Dr. Niamh O’Connell, National …

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Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review’. This document, a second issue of 2019, …

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