News 2019

Educational Grants 2019

Have you been accepted onto a post second level educational course? Are you going to college? Do you have haemophilia or a related bleeding disorder? Are you a family member of a person with haemophilia or related bleeding disorder? Yes, Read more >

Mild / Moderate Haemophilia Information Day

  The Irish Haemophilia Society are pleased to announce that an information day for people with mild and moderate haemophilia will take place on July 20th in Kilashee Hotel in Naas, Co Kildare. This information day will give people an opportunity Read more >

Family Adventure Overnight

Lilliput Adventure Centre, Mullingar Co. Westmeath 13th & 14th of July 2019 We are pleased to announce details of our Family Adventure Overnight which is open to all adult members of the I.H.S. and all children aged seven upwards. The Read more >

Ageing Conference 2019

Dates: Friday 28th to Sunday 30th June 2019 Venue: Killeshin Hotel, Portlaoise, Co. Laois We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with Read more >

Talking Red Conference – Belfast

The Irish Haemophilia Society in conjunction with the UK Haemophilia Society are organising an event for women and bleeding disorders in the Northern Ireland Council for Voluntary Action (NICVA) in Belfast onSaturday 22nd June. We hope this conference will help Read more >

Wicklow Mountains Cycle Challenge

Now in its’ fourth year, the Wicklow Mountains Cycle Challenge is an annual event organised by St James’s Hospital Foundation with all proceeds going to St James’s Hospital, Dublin. Since its beginning in 2016, the event has doubled in participation Read more >

Our Spring 2019 Magazine is out now!

The first 2019 issue of our magazine is out now and comes with a host of great articles from members and staff, news and updates, upcoming projects, reports from events, and much more. There are lots of interesting articles; Brian Read more >

Father & Son(s) Overnight 2019

We are pleased to announce details of our Father & Son(s) Overnight, which will take place over the weekend of Saturday 18th & Sunday 19th of May 2019 in Lilliput Adventure Centre in Mullingar, Co. Westmeath. This event is open Read more >

Gene Therapy – The Patient Perspective

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >

Safety in Gene Therapy

One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies. A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, Read more >

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