This season’s issue has a host of great articles from members and staff, interviews, galleries, upcoming projects, events, and much more. There are interesting articles on new developments in haemophilia care, plans for celebrating the 50th Anniversary of I.H.S. and World Haemophilia Day, a gallery of photos of our young members making the most of …
A statement has been issued by Roche (see below) with regards to the deaths of five individuals with haemophilia with inhibitors who passed away while receiving Hemlibra (previously known as Emicizumab). One of these deaths was previously known as it had been reported previously as part of the clinical trial for the therapy. Three of …
Looking for a challenge this summer or simply some fun in the sun? With registration due to open on March 7, look no further than the VHI Women’s Mini Marathon. Attracting thousands of dedicated women to walk, run or jog and raise awareness for a charity of their choice, The VHI Women\’s Mini Marathon will …
Ms Patricia Timmons has been appointed to the role of Clinical Nurse Coordinator for Hepatitis C HAA cardholder patients. It is hoped that patients who have been waiting on an assessment of need / review of existing needs in the period since Anne Daly’s departure in 2017, will be prioritised. Following this, Patricia will …
Our Winter Magazine is out now! This season’s issue has a host of great articles from members and staff, interviews, upcoming projects, events, fun, quizzes and games for the kids and much more. There are interesting articles on new developments in haemophilia care, plans for celebrating the 50th Anniversary of I.H.S., important updates on hospital charges …
Ground-breaking study will improve patients\’ quality of life through personalised treatment The Irish Haemophilia Society in partnership with RCSI (Royal College of Surgeons Ireland), Science Foundation Ireland (SFI), Trinity College, St. James’s Hospital (National Coagulation Centre) and Shire, have announced a major new €4 million, patient-orientated study entitled The Irish Personalised Approach to the Treatment …
Our Autumn Magazine is now published! This season\’s magazine contains updates from CEO Brian O\’Mahony on the inquiry into contaminated blood products in the UK, advancements in haemophilia therapy and advocacy for improvement of care. It contains new information on services for those with bleeding disorders, educational grants, upcoming events and personal stories. There …
We are pleased to announce details of our Members’ Conference, which takes place in the Hodson Bay Hotel in Athlone, Co. Westmeath, over the weekend of 20th to 22nd October, 2017. Adults’ Programme The adults’ programme, we hope, gives a mix of educational and practical interactive sessions for all. On Saturday, the programme consists of …
People with haemophilia receive recombinant factor concentrates to help their blood to clot. However, in some people, the immune system may produce antibodies which block the effects of the treatment. These antibodies are known as ‘inhibitors’. Each year we have several smaller educational meetings in Dublin and around the country to address members with …
