AGM 2017

The AGM and Conference will take place over the weekend of 3rd to 5th March 2017 in the Slieve Russell Hotel in Co. Cavan. AGM packs have gone out to members in the post. The closing date for registration is Read more >

Carrier Testing

Inherited bleeding disorders such as haemophilia can have an impact on daily life and psychological wellbeing not only of the affected individual but also on carrier mothers and other close family members. Before embarking on parenthood, known carriers or those Read more >


The recently published SIPPET study which looked at the relative risk of developing inhibitors using recombinant FVIII as opposed to plasma-derived FVIII containing von Willebrand factor demonstrated a significantly higher risk of FVIII inhibitors when using recombinant FVIII. This has Read more >

I.H.S. Hoodies

Our comfy I.H.S. hoodies are now available to purchase at all of our events and conferences. They come in a range of different sizes and are priced from €20 to €25. If you are interested in purchasing a hoodie, please Read more >

EHC Leadership Conference 2016

The second standalone EHC leadership conference took place in Brussels from the 9th to the 12th of June, 2016. The conference brought together volunteers, staff and board members from each EHC National Member Organisation (NMO), in order to discuss common Read more >

New therapeutic developments in haemophilia

Extended Half-Life Factor VIII In November 2015, the first extended half-life (EHL) factor VIII concentrate was licenced in Europe by the European Medicines Agency (EMA). In April 2016, the first two EHL factor IX concentrates were licenced by the EMA. Read more >

New Children’s Hospital

Planning Permission has been granted for the new children’s hospital in St. James’s Hospital. The Irish Haemophilia Society are delighted that planning permission has been granted, for the new children’s hospital project. This is great news for children, young people and Read more >

Travel Insurance

When you are travelling abroad Travel Insurance is vital.  Medical insurance should be checked well in advance of departure as it can be difficult to obtain for a person with haemophilia or related bleeding disorder.  A company that does provide Read more >

vCJD update

The first case of variant Creutzfeldt-Jakob disease (vCJD) in a patient that is genetically different from all previous confirmed cases, has been reported in the UK. This suggests, as researchers have predicted, that the incubation of vCJD may take longer Read more >

Parents Conference

The Parents Conference 2016 will take place on 24th – 26th June in the Sheraton Hotel, Athlone, Co. Westmeath. As this is one of our biggest conference, we would ask you to register your booking as soon as possible as Read more >

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