VHI Women’s Mini Marathon 2020
Are you looking for a challenge this summer or simply some fun in the sun? Maybe it’s time to start thinking about this year\’s VHI Women’s Mini Marathon. The race …
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EAHAD 2020 Congress – A Golden Age of Treatment Choice
From 4 to 7 February 2020, the EAHAD 2020 Congress took place in The Hague, Netherlands. The theme of this year’s Congress was “A Golden Age of Treatment Choice” and, …
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Our Winter Magazine is out now!
Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out …
All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy
Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to …
New Treatment Option for Prophylaxis in Severe Haemophilia A
Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the …
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New Independent Patient Advocacy Service Launched
The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded …
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Haemophilia extends the boundaries of electronic health care in Ireland
On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed …
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(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell
We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, …
(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell Read More »
Exciting new therapy for haemophilia
Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. …