Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
We were very pleased to see that Mary Kavanagh, the Nurse specialist from Children’s Health Ireland at Crumlin has just been appointed as the new Chair of the European Association …
Mary Kavanagh Appointed new Nurses Committee Chair for EAHAD Read More »
Keeping active, given the current situation we find ourselves presented with, is not without its challenges. The same goes for activity for children & adolescents with Haemophilia – thankfully we …
Physical Activity Resources for Children & Adolescents with Haemophilia Read More »
Much like ourselves, the current COVID-19 pandemic has scuppered the European Haemophilia Consortium (EHC) events and World Haemophilia Day plans. They, like us, are continuing to organise events, talks and …
EHC Discussion: Future Perspectives & Bleeding Disorders Treatment Options Read More »
Following the success of our two Webinars and Q&A Sessions last week, we have decided to continue with the series. Further meetings have been organised for; Wednesday, April 22nd @ …
On April 14th, the Society organised the first in a series of Webinar meetings for members via Zoom. This first meeting was with the team from the paediatric comprehensive care …
Haemophilia & Covid-19: The Implications for Haemophilia Services (Q&As – CHI Crumlin) Read More »
Today, April 17th is World Haemophilia Day (WHD). In 2018 and 2019 on this date, the Society celebrated by organising events, art installations and by arranging for many of Dublin’s …
World Haemophilia Day | Covid-19 Update | April 17 Read More »
In an editorial in the Journal Haemophilia this week, the editor and the leaders of WFH discuss their view of the Global ramifications of Covid-19 in Haemophilia. They are of …
While the developing Covid-19 situation has scuppered our ability to organise events for the time being we have decided to do something a little different and host a series of …
A couple of quick updates for member\’s on Comprehensive Care Services & prescribed HIV medicines. Comprehensive Care services for haemophilia and inherited bleeding disorders It is worth repeating that despite …
Update on Comprehensive Care Services & Prescribed HIV Medicines Read More »