AGM and Conference 2023
Our AGM and Conference 2023 will take place the 3rd to 5th March in Slieve Russell Hotel, Cavan.
News
research reveals that over half of people have experienced an unusual bleeding symptom
New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis. Finding Von Willebrand shares the experiences of people living …
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Finding von willebrand
Around 4,900 people are affected by VWD in Ireland, yet only a third have received a diagnosis.
Congratulations to our educational grants recipients
Find out the recipients of this year’s educational grants.
Von Willebrand Disorder Information Day
Our Von Willebrand Disorder Information Day is coming up in December.
October Members’ Conference 2022 Highlights
Read about the highlights of the October Members’ Conference 2022.
First Haemophilia Gene Therapy Licensed by EMA
First Haemophilia Gene Therapy licensed by European Medicines Agency On Wednesday of this week, August 24th, it was announced that the European Medicines Agency ( EMA) have granted a conditional …
update for people with bleeding disorders attending the NCC
We have received an update for members with bleeding disorders attending the NCC, please see below: The global COVID19 pandemic is ongoing and we would like to thank you for …
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Ireland seen as gold standard in Haemophilia Care, 20 years on from publication of Lindsay Tribunal Report
20 years on from the publication of the Lindsay Tribunal Report, procurement of Haemophilia medications in Ireland overseen by the Haemophilia Product Selection and Monitoring Advisory Board (HPSMAB) is now …