Year: 2020

Physical Activity Resources for Children & Adolescents with Haemophilia

Keeping active, given the current situation we find ourselves presented with, is not without its challenges. The same goes for activity for children & adolescents with Haemophilia – thankfully we can help with the latter. We have been sent \’Physical Activity resources for children and adolescents with Haemophilia\’ which was kindly compiled by Paula Loughnane, …

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EHC Discussion: Future Perspectives & Bleeding Disorders Treatment Options

Much like ourselves, the current COVID-19 pandemic has scuppered the European Haemophilia Consortium (EHC) events and World Haemophilia Day plans. They, like us, are continuing to organise events, talks and engage online. Below is a discussion on ‘Future Perspectives and Bleeding Disorders Treatment Options’ EHC President Declan Noone; Prof. Flora Peyvandi & the I.H.S.’s very …

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More Webinar and Q&A Sessions

Following the success of our two Webinars and Q&A Sessions last week, we have decided to continue with the series. Further meetings have been organised for; Wednesday, April 22nd @ 11am. Haemophilia Care in Europe (Brian O\’Mahony, I.H.S. CEO) Wednesday, April 29th @ 11am: Hemlibra Information for Parents (Dr. Beatrice Nolan, Paediatric Consultant Haematologist, CHI …

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Haemophilia & Covid-19: The Implications for Haemophilia Services (Q&As – CHI Crumlin)

On April 14th, the Society organised the first in a series of Webinar meetings for members via Zoom. This first meeting was with the team from the paediatric comprehensive care centre in Crumlin. Below, there are detailed notes of the questions and answers from the session for easy referral for those who attended and those …

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Update on Comprehensive Care Services & Prescribed HIV Medicines

A couple of quick updates for member\’s on Comprehensive Care Services & prescribed HIV medicines. Comprehensive Care services for haemophilia and inherited bleeding disorders It is worth repeating that despite the current Covid-19 pandemic, the comprehensive care centres continue to function. If you need to attend with a serious bleeding episode or in an emergency, …

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