News

Here are some of the presentations from our AGM and Conference that took place over the weekend of the 3rd – 5th March, 2017. I.H.S. History: 1968 to 1982 AN

Gene Therapy The National Coagulation Centre (NCC) will be holding special clinics this month to offer blood tests to people with severe factor IX deficiency to assess their suitability for

  Alprolix is the new extended half life treatment that will be available to haemophilia B patients in Ireland from April 2017. Alprolix will allow patients to infuse less frequently

The AGM & Conference takes place this coming weekend in the Slieve Russell Hotel in Co. Cavan. Many thanks to all of you who booked in to attend this conference.

One of the new prospective treatments for people with haemophilia which are currently undergoing clinical trials is the bi-specific antibody called ‘Emicizumab’. This antibody treatment is designed to be a

March Annual General Meeting & Conference Dates: 3rd – 5th March. Venue: Slieve Russell Hotel, Cavan. We will start off the weekend with registration and an informal buffet dinner on

The Irish Haemophilia Society (I.H.S.) have been working with and collaborating with the Vietnam Hemophilia Association (VHA) since 2010. Back then, haemophilia treatment in Vietnam, was mainly with cryoprecipitate, which

  eHealth Ireland is working to deliver an Electronic Health Record (EHR) for Ireland. As part of this, in 2016 eHealth Ireland is investing resources into 3 project areas known

In mid-November 2016, the Society met with the new Minister for Health Simon Harris to brief him on the haemophilia landscape. We had a very constructive discussion where we pointed