
News
Latest news & updates from the I.H.S.


Mother & Daughter(s) Overnight
Dates: Saturday 24th and Sunday 25th June, 2017. We are pleased to announce details of our first Mother & Daughter(s) Overnight, which will take place on the 24th & 25th

Ageing Conference 2017
We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to

Father & Son(s) Overnight
Dates: Saturday 6th and Sunday 7th May, 2017. Venue: Lilliput Adventure Centre We are pleased to announce details of our first father & son(s) overnight, which will take

AGM & Conference 2017 – Photos
Many thanks to everyone who attended our AGM & Conference 2017. We have uploaded photos from the weekend of our children\’s groups, adult sessions and Gala dinner. Click here to

Information Meetings – New Haemophilia B Treatment
Following a recent tender/procurement process undertaken by the Haemophilia Product Selection Board (which includes both haemophilia doctors and the Society), the recombinant factor IX coagulation factor concentrate used for

Hepatitis C Open Conference
Date: Saturday 13th May 2017 Venue: Castleknock Hotel, Castleknock, Dublin 15 This one‐day conference, (organised by the Irish Haemophilia Society) will be an opportunity for people with Hepatitis C,

Presentations from the I.H.S. AGM and Conference, 2017
Here are some of the presentations from our AGM and Conference that took place over the weekend of the 3rd – 5th March, 2017. I.H.S. History: 1968 to 1982 AN

Clinical Trials
Gene Therapy The National Coagulation Centre (NCC) will be holding special clinics this month to offer blood tests to people with severe factor IX deficiency to assess their suitability for

Long-term Safety and Efficacy Extension Study Data of ALPROLIX, Extended Half-life Treatment for Haemophilia B Patients
Alprolix is the new extended half life treatment that will be available to haemophilia B patients in Ireland from April 2017. Alprolix will allow patients to infuse less frequently