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Irish Haemophilia Society

Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders

Treatment Centres

Bleeding Disorders
Overview

Haemophilia Symptoms & Diagnosis

Inheritance of Haemophilia

Haemophilia Treatment

Haemophilia Treatment for Children

Inhibitors

Gene Therapy

HIV / Hepatitis C

Safety & Supply issues

Overview

Diagnosis of Von Willebrand Disorder

Types of Von Willebrand Disorder

Treatment of Von Willebrand Disorder

VWD Guidelines

Overview

Treatment of Rare Factor Deficiencies

Overview

Bernard – Soulier Syndrome (BSS)

Glanzmann Thrombasthenia

Treatment of Platelet Disorders
Living with Bleeding Disorders
Overview

Managing Bleeds for Adults with Haemophilia

Joint Issues in Adults with Haemophilia

Pain Management for Adults with Haemophilia

Ankle Bleeds & Sprains in Bleeding Disorders

Injection Site Care

Dental Care for Adults with Haemophilia

Overview

Bleeding Disorders Affecting Women

Treatment

Self-Advocacy

For Healthcare Professionals

European Principles of Care for Women and Girls with Bleeding Disorders

Overview

Sports & Exercise

Bleeds & Injuries

Information for Teenage Girls

Moving to Adult Services

Overview

Coping with a Bleeding Disorder Diagnosis

Types of Bleeds

Recognising Bleeds in Infants and Children

The Hospital

Dental Care for Children

Sports

School

Needlephobia

Physical Activity for Younger Children

Raising Teenagers with Bleeding Disorders

Moving from Paediatric to Adult Services

Barretstown Camps

Overview

Age-Related Health Risks

Haemophiliac Anthropathy

Healthy Ageing

Managing Pain

Overview

The Benefits of Swimming

I.H.S. Exercise Classes

Mental Health & Wellbeing

Travel & Moving Abroad

MyIndici Patient Portal
Services & Support
Outreach & Support Services

Education & Information
Advocacy

Apartment Facility
Educational Grants

WhatsApp Community
Resources
Overview

Quarterly Magazines

Information Booklets

Annual Reports

Novel Products Reviews

Webinars

Podcasts

Facing the Rising Sun – 50 Years of the Irish Haemophilia Society

My Buddy Cormac

The Condom Man

Infographics

E-zines

National Ambulance Directive

Finance Webinar Presentation
Events
Upcoming Events
Past Events
About Us
Overview

Strategic Plan 2025 - 2028

Strategic Plan 2020 – 2024

Strategic Plan 2015 - 2018

Overview

Annual Reports

History of the I.H.S.

Overview

Haemophilia Product Selection & Monitoring Advisory Board

National Haemophilia Council

Consultative Council on Hepatitis C

National Treatment Guidelines & Protocols

Staff

Executive Board

International Development Work

Overview

World Federation of Haemophilia

European Haemophilia Consortium

Irish Haemophilia Society

Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders

Bleeding Disorders
Overview

Haemophilia Symptoms & Diagnosis

Inheritance of Haemophilia

Haemophilia Treatment

Haemophilia Treatment for Children

Inhibitors

Gene Therapy

HIV / Hepatitis C

Safety & Supply issues

Overview

Diagnosis of Von Willebrand Disorder

Types of Von Willebrand Disorder

Treatment of Von Willebrand Disorder

VWD Guidelines

Overview

Treatment of Rare Factor Deficiencies

Overview

Bernard – Soulier Syndrome (BSS)

Glanzmann Thrombasthenia

Treatment of Platelet Disorders
Living with Bleeding Disorders
Overview

Managing Bleeds for Adults with Haemophilia

Joint Issues in Adults with Haemophilia

Pain Management for Adults with Haemophilia

Ankle Bleeds & Sprains in Bleeding Disorders

Injection Site Care

Dental Care for Adults with Haemophilia

Overview

Bleeding Disorders Affecting Women

Treatment

Self-Advocacy

For Healthcare Professionals

European Principles of Care for Women and Girls with Bleeding Disorders

Overview

Sports & Exercise

Bleeds & Injuries

Information for Teenage Girls

Moving to Adult Services

Overview

Coping with a Bleeding Disorder Diagnosis

Types of Bleeds

Recognising Bleeds in Infants and Children

The Hospital

Dental Care for Children

Sports

School

Needlephobia

Physical Activity for Younger Children

Raising Teenagers with Bleeding Disorders

Moving from Paediatric to Adult Services

Barretstown Camps

Overview

Age-Related Health Risks

Haemophiliac Anthropathy

Healthy Ageing

Managing Pain

Overview

The Benefits of Swimming

I.H.S. Exercise Classes

Mental Health & Wellbeing

Travel & Moving Abroad

MyIndici Patient Portal
Services & Support
Outreach & Support Services

Education & Information
Advocacy

Apartment Facility
Educational Grants

WhatsApp Community
Resources
Overview

Quarterly Magazines

Information Booklets

Annual Reports

Novel Products Reviews

Webinars

Podcasts

Facing the Rising Sun – 50 Years of the Irish Haemophilia Society

My Buddy Cormac

The Condom Man

Infographics

E-zines

National Ambulance Directive

Finance Webinar Presentation
Events
Upcoming Events
Past Events
About Us
Overview

Strategic Plan 2025 - 2028

Strategic Plan 2020 – 2024

Strategic Plan 2015 - 2018

Overview

Annual Reports

History of the I.H.S.

Overview

Haemophilia Product Selection & Monitoring Advisory Board

National Haemophilia Council

Consultative Council on Hepatitis C

National Treatment Guidelines & Protocols

Staff

Executive Board

International Development Work

Overview

World Federation of Haemophilia

European Haemophilia Consortium
Treatment Centres
National Coagulation Centre (NCC) At St. James's Hospital

Children's Health Ireland (CHI) Crumlin

Cork Coagulation Centre

University Hospital Galway

Treatment Centres Worldwide

Hepatits C Liaison Officers

National Haemophilia Council Treatment Guidelines
Get Involved
Membership

Fundraising

Volunteering

Donations

Leave A Legacy

Planned Giving
Contact Us

News

Latest news & updates from the I.H.S.

New clinical webinar series

Find out information about our new series.

All News

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no routine out-patient clinics At NCC during EAHAD meeting

Find out about NCC hours during EAHAD

Hospital Christmas Opening Hours

Find out Christmas opening hours.

NCC IT System Outage

Notice from the NCC

New Series of Clinical Webinars

Find out about our new series of clinical webinars.

Brian O'Mahony

HIV/AIDS Documentary Airing Tonight on RTE

The documentary is airing at 23.45 tonight.

Picture of phone with various apps

Join our new WhatsApp Community

Find out more about this new communication method.

HIV memorial Service

Thursday 17th April 2025.

The New Home Treatment App is Up and Running

MproHealthcare is now available to use. Find out more.

Phone with apps

Update from the NCC regarding the new Home Treatment App

Message from the National Coagulation Centre.

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Irish Haemophilia Society

Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders

Irish Haemophilia Society
First Floor, Cathedral Court, New Street, Dublin 8
Tel: +353 (0)1 657 99 00
Fax: +353 (0)1 657 99 01
Email: info@haemophilia.ie

© Irish Haemophilia Society
Company Registration Number: 142834
Registered Charity No: 9214
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