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Our Winter Magazine is out now!
Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out
All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy
Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to
New Treatment Option for Prophylaxis in Severe Haemophilia A
Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the
New Independent Patient Advocacy Service Launched
The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded
Haemophilia extends the boundaries of electronic health care in Ireland
On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed
(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell
We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind,
Exciting new therapy for haemophilia
Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend.
Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2
The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia
Update & Info: National Haemophilia System (iNDICI)
National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been