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Important Message: COVID 19 & AGM
For those of you booked in for our AGM & Conference, we are looking forward to seeing you all in Cavan tomorrow. Before that however, we\’ve have some important information
First person with haemophilia in Ireland treated with gene therapy
The Irish Haemophilia Society has today announced that gene therapy has been used for the first time to treat a person with haemophilia in Ireland. The recipient has received gene
VHI Women’s Mini Marathon 2020
Are you looking for a challenge this summer or simply some fun in the sun? Maybe it’s time to start thinking about this year\’s VHI Women’s Mini Marathon. The race
Von Willebrand’s Disorder Information Day
Saturday April 18, 2020 | Castleknock Hotel, Dublin The Irish Haemophilia Society is delighted to announce that an information day for people with von Willebrand’s (VWD) will take place on Saturday,
EAHAD 2020 Congress – A Golden Age of Treatment Choice
From 4 to 7 February 2020, the EAHAD 2020 Congress took place in The Hague, Netherlands. The theme of this year’s Congress was “A Golden Age of Treatment Choice” and,
AGM & Conference 2020
The AGM & Conference 2020 will take place in the Slieve Russell Hotel, Co Cavan over the weekend of March 6th to 8th. AGM packs have gone out to members
Our Winter Magazine is out now!
Christmas is almost here, and we hope you, like all of us in the I.H.S. office, are getting excited for the fun and festivities ahead! Our Winter Magazine is out
All haemophilia A patients in Republic of Ireland get continued access to extended half-life factor replacement therapy
Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to
New Treatment Option for Prophylaxis in Severe Haemophilia A
Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the