Photos From our 2024 AGM & Conference
See some of the photos from our 2024 AGM & Conference.
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Latest news & updates from the I.H.S.
See some of the photos from our 2024 AGM & Conference.
Agreement has been reached on the continued provision of Extended Half Life (EHL) FVIII as an option for the treatment of Haemophilia A in Ireland for a further year to
Emicizumab (brand name: Hemlibra) is a bi-specific antibody which binds to both activated FIX and FX and allows the coagulation cascade to continue, and the blood to clot, in the
The Patient Advocacy Service is a new independent, free and confidential service to assist people to make a complaint about the care they have experienced in public acute hospitals. Funded
On October 14th 2019, the National Haemophilia Service in Ireland initiated a new and innovative advanced e health system for haemophilia and inherited bleeding disorders. The new system was developed
We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind,
Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend.
The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia
National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been
The weather is getting cooler, the evenings are getting shorter and the member\’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our