News

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Monday, June 15th @ 1pm – Update on New Children’s Hospital with Eilish Hardiman,

We have received an update on clinics and consultations from the National Coaguation Centre (NCC) in St James’s Hospital, please see below: We would like to thank everyone in the

iPATH Research Programme Today, Friday June 5th, we had a very interesting presentation by Prof. James O’Donnell from the NCC on the Irish Personalised approach to the Treatment of Haemophilia

  Dental Care In this weeks E Zine, we include an update by Laura Parkinson, Dental Hospital on the use of telemedicine in Dentistry for people with bleeding disorders during

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday, May 27th @ 11am: Hemlibra Update for Parents with Dr Beatrice Nolan and

Gene Therapy As Gene Therapy clinical trials in haemophilia continue, there is every possibility that we will see the first licenced Gene Therapy for Haemophilia A this year and for

The physiotherapy team in the National Coagulation Centre (NCC) in St James\’s Hospital, is doing a survey of people with severe haemophilia that attend the NCC. They are looking for

Our Annual Report 2019 is available now with overviews on our activities, events, support and finance, and more from last year. A hard copy will be be printed and mailed

Continuing with our series of Webinars and Zoom Sessions, up next we have; – Tuesday, May 19th @ 11am: Resilience for Children with Yvonne Duane, Psychologist at CHI Crumlin –