
News
Latest news & updates from the I.H.S.


Von Willebrand\’s Disorder (VWD) Information Day 2020
The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disorder (VWD) will now take place on Saturday, August 29 in the Castleknock
Reported death of children on non-Haemophilia Gene Therapy clinical trial
In recent days, we have been made aware of the death of 2 children who were being treated as part of a clinical trial for Gene Therapy for a very

Haemophilia B Webinar :: July 18
Haemophilia B (or Christmas disease) is a bleeding disorder whereby there is a deficiency of factor IX. With so many new developments in the pipeline, in relation to haemophilia B,

Mild & Moderate Haemophilia Webinar :: Cancelled
The webinar for people with mild and moderate haemophilia planned for Saturday July 18 has unfortunately cancelled.

(Watch) Dental Care: The New Normal
As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Alison Dougall and Laura Parkinson discuss ‘Dental Care: The New Normal’. Recorded on Wednesday, June 24

2020 Educational Grants: Applications Now Open
We are delighted to announce that applications are now invited for the 2020 Educational Grants. The Society offers educational grants each year to people with haemophilia or related bleeding disorders,

Watch: Exercise & Physical Activity for Children
As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Paula Loughnane, Senior Physiotherapist at CHI Crumlin discusses \’Exercise and Physical Activity for Children\’. Paula looks

CEO Update | June 19, 2020
WFH Virtual Summit The WFH Virtual summit has been taking place on-line every day since last Sunday and finishes today. This meeting is taking place in lieu of the WFH

CEO Update | June 12, 2020
Zoom Update meetings We have a varied menu of zoom meetings for members to join for the remainder of this month. On Monday next, June 15th, we have the Chief