
News
Latest news & updates from the I.H.S.


Spring Magazine Out Now!
Our Spring Magazine is out now and is packed with plenty of interesting articles from members and staff, news and updates, reports and more. We like you are hopeful that

Emicizumab (Hemlibra®) Booklets
The Irish Haemophilia Society is delighted to share two new booklets on Emicizumab (Hemlibra®). There is one booklet for people with Factor VIII Inhibitors and one for people with Factor

Further update from National Coagulation Centre dated 27th April 2021
As we continue through this global pandemic we would like to thank you for your continued support and patience and we would like to update you on two topics (i)

World Haemophilia Week 2021 :: von Willebrand Disorder (VWD) :: A Recap ::
Von Willebrand Disorder was the focus of World Haemophilia Week this year. We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the

General Update from National Coagulation Centre | April 22
We have received an update regarding services in the National Coagulation Centre – please see below: General Information Patient consultations will continue either by telephone or video call. Face

Update regarding Covid-19 vaccination in people with bleeding disorders
We have received an update from the National Coagulation Centre (NCC) regarding Covid-19 vaccination in people with bleeding disorders, you can read it below: Any person with a bleeding

Update regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital
We have received a communication (on April 23) regarding ward designation for people with bleeding disorders who require admission to St. James’s Hospital. You can read it below: Update

Living with von Willebrand Disorder :: World Haemophilia Week 2021 Videos
Von Willebrand Disorder (VWD) is the most common inherited bleeding disorder yet 90% of people with VWD globally remain undiagnosed. We fully appreciate the need for greater education about VWD,

Innovative education tool will make a big difference to children with Haemophilia
Students from the Creative Media Department of Munster Technological University working in collaboration with Children’s Health Ireland (CHI) at Crumlin and the Irish Haemophilia Society, are creating an innovative education