Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia …
National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been …
Update & Info: National Haemophilia System (iNDICI) Read More »
The weather is getting cooler, the evenings are getting shorter and the member\’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our …
A couple of updates from the Haemophilia Centres for members…. Firstly, the iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on …
The Irish Blood Transfusion Service (IBTS) has today announced that the permanent deferral of people who had resided in the UK for a cumulative period of more than 1 year …
vCJD permanent deferral policy to be reversed – IBTS Read More »
The summer issue of our magazine is out now and comes packed with loads great and interesting articles from members and staff, news and updates, upcoming projects, reports from events, …
The deadline for applications for the I.H.S. Educational Grants has now passed; best of luck to everyone who applied! The next steps? A subgroup of three people from the executive board …
Our Family Adventure Overnight in Lilliput Adventure Centre has been cancelled due to the very low number of registrations received. We are pleased to announce details of our Family Adventure …
Now in its’ fourth year, the Wicklow Mountains Cycle Challenge is an annual event organised by St James’s Hospital Foundation with all proceeds going to St James’s Hospital, Dublin. Since …