Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Just a short note to inform you that the physiotherapy team in the National Coagulation Centre in St James\’s Hospital, will be doing a survey of people with severe haemophilia …
Physiotherapy Update: National Coagulation Centre, St James\’s Hospital Read More »
We were very pleased to see that Mary Kavanagh, the Nurse specialist from Children’s Health Ireland at Crumlin has just been appointed as the new Chair of the European Association …
Mary Kavanagh Appointed new Nurses Committee Chair for EAHAD Read More »
Keeping active, given the current situation we find ourselves presented with, is not without its challenges. The same goes for activity for children & adolescents with Haemophilia – thankfully we …
Physical Activity Resources for Children & Adolescents with Haemophilia Read More »
Much like ourselves, the current COVID-19 pandemic has scuppered the European Haemophilia Consortium (EHC) events and World Haemophilia Day plans. They, like us, are continuing to organise events, talks and …
EHC Discussion: Future Perspectives & Bleeding Disorders Treatment Options Read More »
Following the success of our two Webinars and Q&A Sessions last week, we have decided to continue with the series. Further meetings have been organised for; Wednesday, April 22nd @ …
On April 14th, the Society organised the first in a series of Webinar meetings for members via Zoom. This first meeting was with the team from the paediatric comprehensive care …
Haemophilia & Covid-19: The Implications for Haemophilia Services (Q&As – CHI Crumlin) Read More »
Today, April 17th is World Haemophilia Day (WHD). In 2018 and 2019 on this date, the Society celebrated by organising events, art installations and by arranging for many of Dublin’s …
World Haemophilia Day | Covid-19 Update | April 17 Read More »
In an editorial in the Journal Haemophilia this week, the editor and the leaders of WFH discuss their view of the Global ramifications of Covid-19 in Haemophilia. They are of …
While the developing Covid-19 situation has scuppered our ability to organise events for the time being we have decided to do something a little different and host a series of …