News 2018

Ageing Conference 2018

We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is Read more >

Update: New Policy in Relation to Gripper Needles

Due to a new HPRA policy on medical devices, gripper needles that are not CE marked can no longer be bought in pharmacies without a signed letter from your GP. For anybody who is low on their gripper needle supply, Read more >

Carrier Conference 2018

We are pleased to announce that we have organised a ‘Carrier Conference’, which will take place over the weekend of Saturday 12th & Sunday 13th May, 2018 in Castleknock Hotel, Dublin. The conference is open to females aged 16 years Read more >

Our Spring 2018 Magazine is out now!

This season’s issue has a host of great articles from members and staff, interviews, galleries, upcoming projects, events, and much more. There are interesting articles on new developments in haemophilia care, plans for celebrating the 50th Anniversary of I.H.S. and Read more >

Hemlibra (emicizumab) Update

A statement has been issued by Roche (see below) with regards to the deaths of five individuals with haemophilia with inhibitors who passed away while receiving Hemlibra (previously known as Emicizumab). One of these deaths was previously known as it Read more >

VHI Women’s Mini Marathon 2018

Looking for a challenge this summer or simply some fun in the sun? With registration due to open on March 7, look no further than the VHI Women’s Mini Marathon. Attracting thousands of dedicated women to walk, run or jog Read more >

Update: 50th Anniversary AGM & Conference Rescheduled

As you are all aware due to adverse weather conditions we had to postpone our AGM & Conference last weekend. As you can imagine, the staff and board were all hugely disappointed as were lots of members, volunteers and speakers. Read more >

AGM Travel Update

As you are no doubt aware, Met Éireann is forecasting some bad weather over the coming days. With that in mind, we are reminding members of public transport options currently available to get you to the Royal Marine Hotel in Read more >

New appointment to the role of Clinical Nurse Coordinator for Hepatitis C HAA cardholder patients

  Ms Patricia Timmons has been appointed to the role of Clinical Nurse Coordinator for Hepatitis C HAA cardholder patients. It is hoped that patients who have been waiting on an assessment of need / review of existing needs in Read more >

AGM 2018

  The AGM & Conference 2018 will take place in the Royal Marine Hotel, Dun Laoghaire, Co. Dublin over the weekend of March 2nd to 4th. AGM packs have gone out to members in the post and if you would Read more >

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