Bleeding Disorders

Image of the map of Ireland for regional visits

Regional visit to Cork

Members, our first regional visit of the year is taking place the 13th and 14th of February in Cork. We will be meeting at the Kingsley Hotel in Cork from 6-8pm on the 13th, where there will be refreshments and the opportunity to discuss any issues you might be having. If a member cannot attend …

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von Willebrand

research reveals that over half of people have experienced an unusual bleeding symptom

New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis. Finding Von Willebrand shares the experiences of people living with von Willebrand’s disorder to raise awareness of the condition and support diagnosis in Ireland Dublin, 28th November 2022: Finding von Willebrand, a new campaign …

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Photo of Dara Dowling receiving an educational grant

Shared Experiences from Previous winners of Our Educational Grants

We are now taking applications for our 2022 Educational Grants. Our grants are designed for members going into post-second level education and are open to members with bleeding disorders, as well as to carriers and immediate family members. We want to share a few personal experiences from those who have been successful previously and how …

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Ageing Conference 2022

Dates: 2nd to 4th September 2022 Venue: Hodson Bay Hotel, Athlone, Co. Westmeath. We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is very reassuring …

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