Bleeding Disorders

New research reveals that more than half of people have experienced an unusual bleeding symptom

New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis Finding Von Willebrand shares the experiences of people living with von Willebrand’s disorder to raise awareness of the condition and support diagnoses in Ireland Dublin, 28th November 2022: Finding von Willebrand, a new campaign …

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Photo of Dara Dowling receiving an educational grant

Shared Experiences from Previous winners of Our Educational Grants

We are now taking applications for our 2022 Educational Grants. Our grants are designed for members going into post-second level education and are open to members with bleeding disorders, as well as to carriers and immediate family members. We want to share a few personal experiences from those who have been successful previously and how …

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Ageing Conference 2022

Dates: 2nd to 4th September 2022 Venue: Hodson Bay Hotel, Athlone, Co. Westmeath. We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is very reassuring …

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update for people with bleeding disorders attending the NCC

We have received an update for members with bleeding disorders attending the NCC, please see below: The global COVID19 pandemic is ongoing and we would like to thank you for your continued support and patience. Although overall case numbers and numbers of people needing hospitalisation have improved in comparison to earlier waves, there is a …

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New Video Focuses on Transition to Adult Health Services

Brilliant New Video Shines a Light on Transition from a paediatric (children’s) hospital to an adult hospital. Sunday, 17 April marked World Haemophilia Day 2022. This year, the National Coagulation Centre (NCC) at St James’s Hospital and Children’s Health Ireland (CHI) are shining a light on the journey experienced by young people when they transfer …

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