News 2017

Carrier Testing

Inherited bleeding disorders such as haemophilia can have an impact on daily life and psychological wellbeing not only of the affected individual but also on carrier mothers and other close family members. Before embarking on parenthood, known carriers or those Read more >


The recently published SIPPET study which looked at the relative risk of developing inhibitors using recombinant FVIII as opposed to plasma-derived FVIII containing von Willebrand factor demonstrated a significantly higher risk of FVIII inhibitors when using recombinant FVIII. This has Read more >

I.H.S. Hoodies

Our comfy I.H.S. hoodies are now available to purchase at all of our events and conferences. They come in a range of different sizes and are priced from €20 to €25. If you are interested in purchasing a hoodie, please Read more >

EHC Leadership Conference 2016

The second standalone EHC leadership conference took place in Brussels from the 9th to the 12th of June, 2016. The conference brought together volunteers, staff and board members from each EHC National Member Organisation (NMO), in order to discuss common Read more >

New therapeutic developments in haemophilia

Extended Half-Life Factor VIII In November 2015, the first extended half-life (EHL) factor VIII concentrate was licenced in Europe by the European Medicines Agency (EMA). In April 2016, the first two EHL factor IX concentrates were licenced by the EMA. Read more >

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