One of the major topics at our AGM & Conference at the beginning of March was Novel Therapies.
A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, it is our clear expectation that some people with haemophilia here in Ireland will have an opportunity to participate in some of these clinical trials.
We understand that the science of Gene Therapy is complex and not always easy to communicate.
We are delighted therefore to announce that over the next few weeks, we will be posting a short video on Gene Therapy each Friday.
These short professionally produced videos were commissioned by the European Haemophilia Consortium. The speakers were carefully selected, not only for their understanding of the topic, but for their clear ability to communicate this information.
This week’s video is an overview on ‘Safety in Gene Therapy’ with Dr. Mike Makris from Sheffield .
This will be followed by:
March 29: Gene Therapy – The Patient Perspective
Speaker – Jack Grehan from the UK
We hope you enjoy these short presentations. We would very much welcome your feedback and comments.
The previous videos are available in the Newsfeed section of our website.