Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders
Following our Von Willebrand Disorder Information Day in 2022 we are holding another information day to bring people with VWD and those interested or connected with the disorder together. During the information day, Professor James O'Donnell, Consultant Haematologist at St. James's Hospital will share updates about the treatment for VWD. There will also be an …
Our ‘October Members’ Conference’ will take place over the weekend of the 20th to 22nd of October 2023, in Mount Wolseley Hotel in Carlow. We have an engaging adults programme planned for the weekend and a children's programme filled with fun activities and games. Please find the booking form below. Members, we have now reached …
The Irish Haemophilia Society are pleased to announce a conference for women with bleeding disorders, which will take place on Saturday 2nd and Sunday 3rd December in the Grand Hotel in Malahide, Co. Dublin. This conference will feature talks and information on menstruation, heavy menstrual bleeding, pregnancy, menopause, diet, panel discussions and a Pilates class. …
We are excited to announce that our ‘Annual General Meeting & Conference’ will take place over the weekend of the 1st to 3rd March 2024 in the Slieve Russell Hotel in Cavan. On Saturday morning the AGM will take place, followed by a range of talks you will find on the Preliminary Adults Programme below. …
We are now living in a time where the first generation of people with haemophilia and related bleeding disorders will have to confront the challenges of ageing. Many people with haemophilia and related bleeding disorders can expect to live beyond their 70th or even 80th year. This is very reassuring and a testament to the …
Our VWD & RBD Information Day is taking place in July this year. Find out more!
Our Mild Haemophilia Day is taking place in September this year. Stay tuned for further information!
Registration for our conference in October is now open! Register online here!
Zoom meeting for members regarding Altuvoct
Register for our 2025 AGM & Conference.
Our 2025 Ageing Conference is taking place the 27th - 29th June.
Our Parent & Child/Children overnight event is taking place the 12th of July.