The I.H.S. has always looked to play our part in assisting people with haemophilia worldwide, especially those who are not fortunate enough to live in a developed country. In many developing and emerging countries, the reality of living with haemophilia on a day to day basis is grim. Many people with haemophilia do not survive into adulthood. Others are receiving a level of treatment and care which is comparable to or possibly worse than treatment in Ireland forty years ago. The I.H.S. is playing their part in alleviating the suffering of people with haemophilia in the developing and emerging world.
The I.H.S. contribute to the World Federation of Hemophilia (WFH) Global Alliance for Progress Programme which aims to achieve the diagnosis and treatment of up to 50,000 new people with haemophilia in 30 countries over a ten year period. We work with the WFH on their humanitarian aid programme and have had numerous successful Twinning Programmes which is another programme that the WFH introduced. We are also involved in the WFH Product Safety Committee, the Executive Committee and the Psychosocial Committee.
The I.H.S. contribute to the European Haemophilia Consortium (EHC) in many areas including Health Technology Assessments, Economics, Surveys, EU regulations and are involved in their Steering Group, Medical Advisory Group and Data and Economics Committee.