Mild/Moderate Haemophilia Information Day
To mark World Haemophilia Day, we are holding a Mild/Moderate Haemophilia Information Day which will take place in the Grand Hotel in Malahide on the 22nd of April, 2023. This …
News
Regional visit to Cork
Members, our first regional visit of the year is taking place the 13th and 14th of February in Cork. We will be meeting at the Kingsley Hotel in Cork from …
AGM and Conference 2023
Our AGM and Conference 2023 will take place the 3rd to 5th March in Slieve Russell Hotel, Cavan.
research reveals that over half of people have experienced an unusual bleeding symptom
New research reveals that more than half of people have experienced an unusual bleeding symptom, as campaign launches to improve diagnosis. Finding Von Willebrand shares the experiences of people living …
research reveals that over half of people have experienced an unusual bleeding symptom Read More »
Finding von willebrand
Around 4,900 people are affected by VWD in Ireland, yet only a third have received a diagnosis.
Congratulations to our educational grants recipients
Find out the recipients of this year’s educational grants.
Von Willebrand Disorder Information Day
Our Von Willebrand Disorder Information Day is coming up in December.
October Members’ Conference 2022 Highlights
Read about the highlights of the October Members’ Conference 2022.
First Haemophilia Gene Therapy Licensed by EMA
First Haemophilia Gene Therapy licensed by European Medicines Agency On Wednesday of this week, August 24th, it was announced that the European Medicines Agency ( EMA) have granted a conditional …