Irish Haemophilia Society

Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders

Irish Haemophilia Society

Representing people living with haemophilia, von Willebrand’s and other inherited bleeding disorders

IHS-AGM_2024-16

Executive Board

The Executive Board of the Irish Haemophilia Society (IHS) is responsible for the strategic leadership, governance, and overall direction of the organisation. As a patient-led society, the Board plays a central role in ensuring that the voices and experiences of people with haemophilia and related bleeding disorders remain at the heart of every decision.

Comprised of elected volunteers—including individuals with bleeding disorders, family members, and committed advocates—the Executive Board oversees policy development, organisational planning, financial governance, and the delivery of key support services. Its members work closely with the Chief Executive Officer and Administrator in relation to programmes in education, advocacy, research, and international collaboration.

Board members also represent the Society at national and international levels, contributing to partnerships with the World Federation of Hemophilia (WFH), the European Haemophilia Consortium (EHC), which in turn helps to strengthen the IHS’s mission of improving quality of life, expanding access to treatment, and supporting the bleeding-disorders community across Ireland.

The current board members are:

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