The concept of moving on or transitioning from the familiar and trusted environment of the paediatric service at CHI Crumlin to the adult service at the National Coagulation Centre (NCC) at St. James’s Hospital, can bring about mixed feelings for families. There may be feelings of anxiety around meeting a new team of health professionals, the logistics of finding your way around a different hospital and even finding a parking space! For others, there may be a sense of excitement and anticipation.
At what age do people move to adult services?
Most young people move over to the NCC between the ages of 16 and 18 years. The health care professionals involved in this process are aware that this is often a period of significant change, whereby physical development and growth can be accompanied by many new emotional and social challenges.
What is the process of moving to adult services?
Moving may progress differently for each individual and family. For example, it may be taken into account if a young person is undertaking state exams or siblings close in age who would like to transition together. While there are guidelines in place, the changeover process can be flexible and tailored to meet the individual patient’s needs.
What happens when they move?
Initially, the young person will meet a doctor, a nurse and a social worker. Depending on their needs and concerns they may meet other members of the team such as the dentist, physiotherapist or psychologist. An important part of the process is meeting and getting to know the team who will support the young person in the adult service. Meeting new health care professionals and building a relationship of trust will take some time. It is important to remember that the health professionals in both hospitals are there to support and guide young people and their parents throughout the process. This is a team effort that includes the young person, parents and healthcare providers.
Health care professionals at the NCC focus on adult health needs and medical issues, the team works directly with the young person. While the young person will have the option of attending their appointment on their own or with a family member, they will be encouraged to speak on their own behalf and to meet with health care professionals on their own.
Moving to the adult services involves major changes for all involved. However, it is important to remember that moving on to an adult treatment centre is one of the final steps towards independence and empowering young people in the management of their own bleeding disorder. It is important to remember, however, that transitioning to adult services is the final step in a young person taking over the management of their own bleeding disorder.
If you would like some support in this area, please do get in touch with our Outreach Co-ordinator Robert Flanagan on 01 657 9900.